-
Five and a half years ago, during my second pregnancy, my child was
diagnosed with a Congenital Diaphragmatic Hernia (CDH). All I was told by my OB was that there was a hole in her diaphragm and that she would need surgery. I went home and searched congenital diaphragmatic hernia and I found CHERUBS. Almost everything I learned about CDH was due to CHERUBS. Through their website and their information packet
I recieved in the mail. This information gave me guidance as to what to ask the doctors at and what I need to know about CDH.
There also is a need for research. The fact that the medical community does not know what causes CDH shows there is a definite need for more research.
-
CHERUBS is my new family, is the place I can go to cry or share or ask for prayers and there is always someone listening. CHERUBS is a place full of love, support and understanding. In CHERUBS I know I'm not alone and that my friends (because I have found so many wonderful friends) will always care for me and my family.
-
When my son was diagnosed with CDH,during my pregnancy, I thought it was something simple that could be fixed with surgery once he was born. When he died I was so lost and alone, nobody really understood what CDH was even after I explained it over and over to them. Then I found CHERUBS and immediately I felt at home, everyone is there for me whenever I need them and most importantly I know I am not alone on my own journey of CDH, which makes all the difference!
-
I thought when Colton was first diagnosed it was a one time thing. He's fixed and we were sent on our way. I went to our follow up thinking this is a waste of money. (not that I wouldn't of gone). But then the Dr, came in and said he had bad news. I was so confussed. I immediatly went home a started doing research. And I found my new friends and now I have a better understanding of what is happening. Not all the answers I was looking for. But I do understand it's not my fault. and Thank you for that.
-
Lynne,
Brilliant post......... clap, clap, clap
Pen - love the new avator....
-
Kimberly R - that photo is so gorgeous! I really love it!
-
thanks shaz :) that was at the lake wednesday cole is a swimming freak ! loves it
-
And yes, Lynne, that was a great post. thanks for including us too.
-
I am so glad that you all did not mind me including you in it. I wish I could have included everyone. I hope everyone check's it out especially those who were menitoned and let's me know what they think and if they approve. I love you guys so much!
-
Lynne-your post was WONDERFUL!!!!
With all of us feeling SO strong about CHERUBS and ALL of us spreading CDH Awareness--we can do nothing but get the Awareness out there and with Awareness--means MORE Research.
If we all bond together to keep spreading CDH Awareness--it will get into the public eye and we will stand strong for all we stand for.
Penny-love the new avatar.
Kimberly--I love your new avatar also!!!
Together we can accomplish GREAT things!
