I did too.
Nothing long: cherubs, Grace , CDH....right to the point
Printable View
I did too.
Nothing long: cherubs, Grace , CDH....right to the point
I received this back from Readers Digest.
Dear Stephanie,
Thank you for sharing your submission with us.
We'll be in touch if we decide to publish your contribution.
Sincerely,
The RD.com Editors
1 Reader's Digest Road
Pleasantville, NY 10507
http://www.rd.com/
I did my letter the same, CHERUBS, Shelby, CDH.
Ok, more need to get on this to Readers Digest. More people writting- the more they will know how we want to spread CDH awareness.
I'm glad to see people diving into the Readers Digest route. I'm addicted to that magazine. I had kind of given up hope on them as they have a thing in their magazine in tiny, tiny print that says not to send in articles to them.
Ha!I got the same thing!!
That's probably what they send out to acknowledge they rec'd it.
Let's just hope they read it
Thanks to everyone that has written. They say not to send articles in the magazine but on the web site they do let you submit stories with the caveat that they usually only print there staff writers. It's not readily available, you have to search for the page. That's why I said right away that I was not a writer and was only submitting for them to consider one of there writers write about CDH. I also gave them 2 points of view for the story. We'll see.
Alyx
Ah ha! Good job digging around and finding out that little secret, Alyx. Lord willing, CDH will strike a cord with one of their writers.
Great jobs, everyone! I've been working on some articles from a couple different perspectives too. Shane's story, CHERUBS story, running an on-line non-profit and one on the drama stuff going on (non-personal, abstract on the pitfalls of running an organization while dealing with the occasional issues). I figure any story we can get published that will allow us to type the words "Congenital Diaphragmatic Hernia" in the media is great. So please look at your stories from all different sides - how it affected your family, living in a different city while in the hospital, single parents, through the eyes of your other children, etc.
And contact a local reporter who wants to expand his/her career. I'm very fortunate to live in a area with a lot of writers, several very well known. I also have known the editor of one of the local papers for 20 years (I used to babysit her boys when we both lived in VA and we ran into each other again when she interviewed me about CHERUBS.... God certainly had a hand in that!). I'm going to send these stories into them, hoping that at least 1 will want to help me finally write that book about my story or one will have connections to the Associated Press.
I also am contacting all the local media (tv, radio, newspapers) about the Angel Ball and Golf Tournament. Those of you that are planning to attend - use that as a story too! How you are raising funds to attend or how your family is meeting other CDH families. After the events, write articles about how it was to meet other families.
There is always a story in everything... but in our cases, we each have about 100 stories. The trick isn't to try to fit it all in one article, but to focus on one thing, one event, one moment... and take the readers there with you.
I emailed Oprah last night. Hopefully, the more people that do email her the more they will see just how common CDH really is in our world.
This is all still very new to me. It has taken me so long to get to this point. Thank you to all you for listening to me.
AND you still have to write something for Victoria on YouTube!!!!
how about using what's in the PRG?
What's a PRG??
Show me where it is and I'll have Victoria say it...
Parent Reference Guide. It's over in the downloads section.
Thank you Lise and Victoria! :)
Any of you who want to talk about your cherubs or have your cherub talk about CDH, etc... *anything* to do with CDH and your family.... if you can videotape it, we'd love to post it!
16 pages? OK I printed out what I needed. I'll get it done be4 the kids go back to school on the 7th.
I'll write it out and pass it by you 1st then send it to youtube :-)
CDH on Youtube(TM)
That's how i'm going to present it :-)
Lise- I can't wait to see Victoria!!!
Dawn-if we video tape it and send it to you- will you post it? I have no clue how to do that? Or, if someone can tell me how to do it, I know at least my two oldest would love to talk about CDH and their sister Shelby.
You are too cute, Lise. lol.
No, not all 16 pages are necessary.
Stephanie, if you send it to me in a format ready to upload (I guess digitalized) then I'll figure it out.
That's too much for you Dawn. Thank you for offering.
I just talked to Shane and he is going to help me. We'll see if we can't figure this out.
How many people have written to Readers Digest? Let's get as many people as we can to write to them!!!!! :D
I scanned thru and copied 2 pages...
Tht's our goal for tomorrow.
I wrote to Readers Digest and I think Woman's day( whoever the editor Diane is...that's the one I wrote to) maybe one more but def. 2
Good luck tomorrow, Lise.
I can't wait to see what you come up with.
I think this is a grand idea!!!!
Have fun!!!! :D
So far I've written the Today show, Oprah, Reader's Digest, Women's Day, Ladies Home Journal, parents magazine, Baby Talk and News week once. I'm going to get around to writing them all again here one of these days
Good Gosh, You ahev been so busy!!
Hey, Dawn, where is the letter you wrote for us that we can just copy and put our baby's story in there? Do you have the link?
Here is the link Lise:
cdhsupport.org/members/dload.php?action=file&file_id=51.
This is it. For some reason if it does not work- let me know!
Thanks...that is going to save me a boatload of time.
You ladies are wonderful!!! Thank you for doing this and getting CDH Awareness out there.
I hate not being a woman of my word, but I ended up with 2 massive migraines today.
Ah, the joys of hereditary garbage! :-P
But I'm on it.....
Lise- you got to take care of yourself to be able to take on the world!!!!
I hope this finds you feeling better.
We know your on it and it will rock when you complete it.
I think the only wonderful thing that comes out of my mirgains is I can't raise my voice...so I whisper-yell. :-)
I started to take that Glucosamine pills for joint pain( i have a metal ball in my knee). Those pills, unbeknownest to me have something in them that gives me whoppers of a migrains..and my knee still hurt!
I love 40!
Ask your doctor if he can give you something else that does not give you the mirgrains, and gets rid of the knee pain.
40 is sporty girl!!!!!
50 is nifty.
Are you laughing yet?
Like Vodka???
Well, maybe :P
No really, there has to be something out there to get rid of these migrains and help with your knee pain.
WHy do you have a metal ball in your knee anyway? I am still waiting for your address!!!!!
Ran track.......tripped over a hurtle :-)
twice.
Then in college I pulled a 'superman' and jumped down a flight of steps. I was in so much pain I blacked out :-)
Tore my Patella. There's some kind of metal doohickie in there.........know what it looks like? Know that little 'table' that sometimes comes in the center of the pizza to keep it from smushing against the top of the box? That..but metal.
It's so stinkin' cold here and it hurts.
I got mark. he rubs me knee every night. I know, he has his moments:-)
What can I get for migrains?
( i don't drink ...)
The cold bothers Shane's ankle to.
That's good that Mark rubs your ankle. I could not imagine what it is like to have metal in your knee.
I have no clue what a doctor would give for a migrain? Ask you doctor? i know there must be something to help you.
How about an Alive? Have you tried one of those?
Lise- have you tried Imitrex for migraines?
Imitrax. Maybe i'll try that one. I never did cus I was lawyas pg or ttc. But maybe a trip back to the doc is in my new yr plans.
OK back to the oprah show post!!! :-) We got a bit sidetracked huh???
That's ok to get side tracked.
Really, go see your doctor and see what you can do for you.
So are we working on Oprah or Readers Digest this week?
I was a migraine sufferer before pregnancy and I always took Imitrex. Good stuff!
I thought we were working on Reader's digest? but we can go back and do Oprah again too!! Let's do them all again!!! do you ladies need the list again that I made? does anyone have any new ones to add?
I have to go back and find the list. Kristin you really did awesome!
I don't have anything new to add but I'm going to send off a letter today to someplace!!
Ok, I will also get the list and start re-sending them.
That is a great list Kristin- Thanks.
Maybe with persistence we will get somewhere.
The list is located on page 4 of this forum for those who need to find it. I do want add that Woman's Day rejected my letter, so don't bother writing them again. the only one not on that list is reader's digest but their email is located somewhere on here...I believe Steph posted it somewhere.
Got my second round of letters out today!!! I have to be productive this week cause next week I go back to work and I don't know how much time I will have. I'll try my best to keep on them though!!