Im also looking forward the conference !!!!!!!!!!!
Printable View
Im also looking forward the conference !!!!!!!!!!!
If we're talking July, I'm out : (
Corpus Christi sure did spark an interest with my HUBBY!
I have never travelled by myself, let alone on a plane to the states so Im kind of worried, but super excited!! Watch me get lost in an airport or something...
you will do fine !
:)
Just as an update from my end I heard back from a couple of people, most notably a physician scientist who is currently researching the genes that cause or predispose the development of CDH and he is not only interested in attending the conference, but schedule permitting, willing to speak about his work. Very exciting, I think!
Wow, Bravo Melissa, I am realy hoping to make it. I am due on March 23rd and depending on Juan Damian, we will be there.
Wow Mel! That's really exciting!
I'm so excited for this already...I can't wait!
It's for sure going to be our summer vacation.
We have our conference speakers - 3 of them, 3 AMAZING speakers! I'll post names when we have the conference date and location set.
Kara, we're not giving up on you attending yet!
We currently have July 11 - 26 booked for our east coast vacation. Also just found out that my step sister is expecting a baby the very last of July.
SOUNDS awesome ..
i am crossing fingers we may be able to come .. but not too sure
Sounds wonderful! We are very excited at the thought of attending - can't wait to meet those that will be there and listen to the guest speakers. Will I need to buy a cowboy hat and boots before I am let into the state? lol
oh that sounds cool danielle !
i can see you know cowgirl !
Nah, no boots required. You might get sand in them or trip and spill your margarita, this is a beach town =P
LOL
didnt think about that .. !
Oh no! Here we go again with the whole flip-flop thing! Y'all are killin me! Stop!
Ok Ya'll we have got to get KARA to wear a pair of flip flops .
Pop pop pop pop LOL!
I have em on now Kara .. and it's like 40 outside ..
What's the deal with Kara and flip flops? If we're taking sides, I hate them.
I'll let the rest of you tell Mel the flip flop story.
:ugh:
I talked with my younger sister today and we have a babysitter for the Conference!! I told her that I would pay for her trip as long as she volunteers to watch all the kids whenever she is needed. She is super excited. She has her Bachelors in psychology and has first responder :) Smart cookie she is! Can't wait to see you all!
OH KARA AND FLIP FLOPS
ok ... so the story is .. KARA can't stand the sound of flip flops, nor flip flops at all.
Penny and Corin ,, and if i'm not mistaken kate and tara LOVE flip flops ..
I think Kara would rather wear snowboots in JULY in FLORIDA than wear or hear flip flops LOL!
I still love you Kara and I STILL LOVE my flops!
I may be safer wearing cowboy boots and risking the sand situation rather than face Kara (if she makes it) and Mel in a pair of flip flops ;-). Are you talking all flip flops? Even the really nice leather dressy ones? Or only the cheap rubber ones (we call them thongs down under)?
Kate, that is wonderful that your sister is going to go to the conference and help with the babysitting. I can't wait to meet ya' all (is that the correct Texan way to say it? :-) )
Well I'm only in Texas because my husband lives here (I'm a Jersey girl), but I believe it's "y'all".
Poor Kara. I'm with you girl, I hate them. You and I can represent in real shoes.
Sorry Mel, I'm a major flip flop person. I've gotta have every color and style possible.
I'm hoping we can make the conference or at least just me. Make room Mel.
Wow...gotta love the flip flops..I'm with Penny I wear them in the winter as well...I guess it's the former swimmer in me...always around a pool deck.
Kate-that's great about the babysitter!
You got it, girl. It's okay, I love you despite your horrible taste in footwear =P
At least I know I'm still loved.
Mel and Donna.... I dreamt that I met you both at the conference, with Alex and Michael. In the dream I could hear the suction machines and see the sleeve caths and feel the humid air from the boys vents come through the masks over their trachs. Very surreal dream, took me back to when Shane had all that. Must be a sign that I will see both of you and your boys next summer! :)
How funny! I hope you do get to meet Michael, he's being a very good boy with his ten to twelve hours per DAY off the vent lately. Meeting Alex would be fabulous, but I can't even imagine the logistics of packing that boy up to travel cross country! We go to Houston for one appointment and we look like we're going on safari. =/
One of our nurses and I were laughing the other day trying to picture Alex and Michael disassembling each others equipment. =) They are TROUBLE. I can't wait for the day we can get them in a room together.
8 months is a long time to vent wean.... you never know what equipment these little guys could be rid of by July. :)
Question guys I really want to bring Adrian should we get a oxygen tank for the plane. What you guys do with your cherubs when flighting.
That's something you need to take up with your doctor and the airline. Airlines don't allow you to fly with your own oxygen and even if they do provide you with some for the flight, you need to provide your own when you land. I'd start asking questions now if that's your intention.
Thanks Mel
Adrian doesn't use oxygen right now but I don't know if he is going to need it when we are in the air.
Definately consult your pediatrician or better yet your pulmonologist. There is a high altitude simulation test that they can give to Adrian to see how he would handle flying. I've never had it done on Adam and have never flown with him. Honestly, from all I've heard it's just such a hassle to deal with renting equipment, calling airlines, etc. The last I heard, certain airlines do allow you to take your own oxygen but it has to be within federal guidelines and approved by the airline before taking it on. Not all airlines will allow this, though.
Im in with the flip flop group! !I love them, I'd wear them year round if we didn't get so much snow here!!
Thanks Kara i'm going to talk to his Dr.
welcome to the flip flop club kimberly ..
YAY!! None of my friends like flip flops, I always feel like the odd one out
lol didn't we have this discussion somewhere before.... I am the flip flop queen :) Kara loves it!
OH YES !! wasnt in CONFERENCE planning talk ??
LOL
must be something about conference that makes us get on this subject!
i am flip flop freak ! LOL