You ladies are just awesome!!!! :)
I e-mailed several reporters today, hopefully will bite onto a story about CDH.
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You ladies are just awesome!!!! :)
I e-mailed several reporters today, hopefully will bite onto a story about CDH.
I realy hope and pray Kristin that someone hears us....you are such an amazing advocate for cdh!
You are motivating all of us!!!
I emailed them also, that is a great idea...
Hi Kara.
Thank you so much for joining us. Every little bit helps.
How is candence? What a beautfiul name she has! Is tomorrow her 1st birthday????
I was doing some research on CDH one day while at the NICU and the Oprah show was on the tv in the parent room. I had the idea to submit my daughters story & some information on CDH. I asked that a show be done on CDH to bring more awareness & support for those born with it & their parents. Hopefully one day soon, something will come of it. I think its a great idea & totally agree that if everyone can submit their story, maybe the Oprah Show will respond! Great idea!!!
I hope so Tara. I saw an Oprah show where a woman had twins: one lived, one died. Oprah looked so uncomfortable. I also wrote to Oprah, Ladies Home journal twice, Womans day and one other one.
We were kinda batting around the idea that maybe Oprah feels uncomforatble w/ infant death because her baby died when she was a teen. What do you think? I don't know.....
Welcome to CHERUBS, Tara! We'll get CDH on there - there is power in numbers and CDH moms are notorious for never giving up. :)
Ok ladies, so I was sitting in the bathtub last night reading my Chicken Soup for the Mother's Soul book and I decided to scroll through the back and read about the authors. Hot dog! There is a big list of freelance writers for magazines or magazine article publishers. They list their addresses and/or phone numbers. One in particular struck me that we need to write to.
It said "Liane Kupferberg Carter is a freelance writer whose work has appeared in the New York Times, McCall's Child, Glamour, Cosmopolitan and Newsday. She lives with her family in Westchester, New York, and is a community activist on behalf of children with special needs. She can be reached at lcarter@cloud9.net."
My book was published in 2006 so it's not too old, but you know how people change email addresses often. I don't know if it's still a working email or not, but I bet if we google her name, we could dig up info on her and contact her somehow.
I have her email in a email right now. I'll send something off asap.
I love Chicken Soup...my teens have them too
Gray's Anatomy message board - just posted about this about that thread. Let's start posting and let's get family and friends to post too!
http://abc.go.com/primetime/greysana...931&tid=181433
Very interesting to read the posts on the ABC site. Thanks Dawn for posting to it, too!
Don't thank me, Lise was the one who found the message board this morning and posted it on our Gray's Anatomy thread. I only wish I had read her post sooner! :)
I am going to get on the ABC site now.
Going to email the lady from Chicken Soup-Thanks Kara and i would like to share some news......received this today...
Stephanie,
I received your letter on my desk and I would like to do a web story on this event in Indiana. I think it could turn into a touching article for people not aware of CDH. So if you would like, send me an email back confirming this story and we can take it to the next step.
Thanks for your time-
Dan Guetter
Quad Magazine
My response:
Dan,
Thank you so much for having interest in this Atv ride for CDH awareness.
Your response has brightened my day.
If I can answer any questions- please do not hesitate to ask.
Will you be so kind to let me know how I will be able to access this web story? CHERUBS members will want to read it and allowing Quad readers to view it will bring CDH awareness to a new level.
Stephanie Olivarez
Does that sound ok to your guys?
Sounds great, Stephanie!!!!!!!!!!!!
YEAHHHHHHH!!!!!!!
Now, stupid question... what is Quad magazine? :)
Quad magazine is all about Atv riders....Atv clubs and their rides, different location of trails to ride on, companies that make Atv's, advertisements,etc........They will write this article and talk about the CHERUBS ride in April.
Dawn I read your post on ABC and it is fantastic.
Can you help me and tell me how I can post there? I have just become a member and could not figure it out???
I had a hard time figuring it out too. You just hit the Reply button under someone else's post.
What happened to Dawn's posting on the ABC Grey's Anatomy site. It's GONE!!!!!!!!!!!!!!!!!!!!!!!!!!!
What do you mean it's gone?
I got another letter from an ATV magazine:
Hi Stephanie-
I wanted to let you know that I received yur package in the mail and have read it over. I am going to talk to the publisher and request that we help yo out in any way that we can. I will do my best to get your event date location and time in our news section of the magazine. I will also forward your info to our web guys and have them post this online for you, can you provide me with an e-mail you would like posted online or a website that would have more info, possibly a telephone number? I can use this one but I want to be sure that would be ok with you first.
The next few weeks are really busy for our snowmobile publications and most of the editors/publishers will be out of the country including myself but I will be sure to get back to you, it may be a couple weeks but I will also talk to the appropriate people in that time.
Thanks for taking the time to send your letter,
God Bless,
AJ
My response:
Hello AJ,
Thank you so much for having interest in the ATV ride for CDH awareness.
Your response has brightened my day.
If I can answer any questions- please do not hesitate to ask.
The email address: olivarez@rtcol.com/ solivarez@cherubs-cdh.org
The phone number: 574-224-2223
The website for more CDh information is: cdhsupport.org
Will you be so kind to let me know how I will be able to access the web story and what issue the information about the ride will be in? CHERUBS members will want to read it and allowing ATV magazine readers to view it will bring CDH awareness to a new level.
I appreciate you efforts in helping us with this ATV ride for CHERUBS.
Have a safe and fun trip.
I look forward to talking with you when you return.
Thank You-
Stephanie
CHERUBS Indiana State Representative
I am so happy with two responses in one day. This is a sign that we are going to get CDH awareness out there and get people to know what CHERUBS is all about.
Now I am very courious to see why Dawn's post is gone?
Are the other posts from CHERUBS members gone to?
Ok tonight I was watching Nancy Grace, I happen to love her. For those that don't know she just gave birth to twins that were 2 & 5 lbs., spent time in the NICU & then she became very ill and was hospitilized. She is looking for "extraordinary parents"! I found it interesting but the web site is www.cnn.com/nancygrace....maybe she would be interested in the strength it takes for CDH parents?!?! Worth a shot???
I am on writing to Nancy Grace. It might be a go!!!!!Thanks Tara.
Lise-I just was looking at your bearersofgrace1019.spaces.live.com.
It was wonderful to be able to look at all your pictures. Christmas06,Soakin in God's Love, Grace naked, You are my sunshine.
Thanks for allowing me to view it. I enjoyed it so.
I'm off to write Nancy Grace.
No joking! Go to the Grey's Anatomy link and you'll notice that entry number 9 which is Dawn's is gone. And I wonder who had a hand in that?
I wrote to Nancy Grace & attached the Cherubs website address!!! Keep your fingers crossed ladies!!!! I'm off now to check out the Grey's Anatomy link! I say we keep plugging away & I want to thank you for welcoming me aboard!!! Thanks to all our Cherubs!!!
I also went to Nancy Grace and attached the CHERUBS website. Come on ladies....we need more to get on Nancy Grace. We keep getting CDH awareness out there....someone will jump at the story and it will spread.
Yeah, Kara your right number nine is gone.
I went ahead and posted a little note...very plain and mentioned CHERUBS.
I think ALL of us should go there and Thank ABC for doing a show. Explain about CDH and let them know CHERUBS is a CDH suport group.
Make sure to give them CHERUBS website address.
Maybe this will get them to do another show on a baby with CDH.
Tara, I can't get the link to work. Can you repost it? I love that photo!!!! :)
Kara, I see that and just reposted. Childishness strikes again.
Well, I say that if it gets erased again-keep reposting it.
How can someone erase what you wrote?
I don't get it.
Falsely saying that we infringed upon their trademark, no doubt. I just posted on the Breath of Hope thread about it.
Tara, I had no idea about your babies....2 and 5 lbs wow. Josephine and what is your other childs name? What a beautiful name. I had 2 aunts, great aunts, named Josephine. It's beautiful.
Tara, I hope and pray that NG takes a look at cdh. I know she herself had twins so let's hope that is important to her in considering her choices...Fingers crossed for you tara!!!!
dawn, sorry about the whole CDH thread at ABC.once again it could have helped more parents...that's the goal, but you get the vengeful hands on it and poof once again, it's gone.
Hey there,
I'm new on here, though I have been on the listserve since we lost Bennett. And then I have been missing for awhile off of that since I had my daughter Ella in April. But I just wanted to say hello and ask what I can do from here - I am all for writing people and pestering them!:-) I had a bit of a rough time, especially as there is barely any knowledge of CDH in the Bahamas, so I am all for campaigning to make people more aware of CDH.
And I can't quite comprehend what has been going on with BOH. The fact of the matter is that CDH affects our babies and our children - all of whom are innocent. For someone to take that innocence and be malicious, well, it's just very sad.
Erika.welcome.
I'm a boh-er transplant. :-)
I started boh w/ Elizabeth but ....I didn't agree and now ..hello again :-)
I'm very happy you are here. The Bahamas...wow. I bet it's beautiful.
Ella,Bennett and drew, what beautiful names. Your pictures and website are really pretty.
We are doing a letter writing campaign at "let's get on the oprah show" or something like that...
Welcome welcome!!!
Erika Welcome.
Yes we are trying to get CDH awareness out there.
I believe that on page 4 or 5-Kristin put together a list of all the people who we are writting to get CDH awarenedd out there in the public.
We would love it if you wrote letters. The more letters we send out-the better.
Thanks for helping us to get CDH awareness out there.
We are happy you are here. If you have any questions-please don't hesitate to ask.
Well, 20 minutes later I see that the thread we are on is the oprah show one....duh~goin' to take a nap :-)
Got this email from AJ (ATV Magazine). I am TOTALLY EXCITED!!!!!
Hi Stephanie-
I talked with the Editor this afternoon and he was very happy to help out.(I was able to talk before we both left the country).
I will get the information posted foy you @www.ATVMAG.com. We have one of the largest ATV wedsites in the world so you should see a good response from that. I will need a little time to set that up as I'm going away but I will get it done as soon as possible.
As for the magazine coverage I am going to check our production schudule and see when our next issue gets printed and mailed, the editor seems to think it may be very close to your event date so I will have to do some research and ask the production department is we would be in time for that issue. I have approval to get you into that magazine though as long as the magazine isn't mailed after the event. I will look into this and get you a firm answer as soon as I can.
If I am lazy with a response over the next couple weeks please forgive me as I will have limited access to e-mail.
Thanks, AJ
My response to him:
AJ-
I cannot express to you how Thankful I am to you for helping us out with this ATV ride for CHERUBS. It is wonderful that you are doing all of this extra work. It touches my heart and I appreciate it so.
I look forward to hearing from you when you have the chance.
Again, please have a safe and fun trip.
Stephanie
So I hope the magazine doesn't come out before the ride. I am thinking that if it does-he will put an article in after the event. He seems like a very considerate man.
I am very pleased.
Thanks for the welcome - it makes such a difference to know I am not in this alone - I just deal with all of this a little differently than my darling husband!:-)
I did write to the Oprah show awhile back when someone on the listserve posted that they were going to do a show about losing a child. I never heard back but I will write again! :-)
And yes, it is beautiful here - just can get rock fever sometimes - small island. Just the other day I overheard my husband's aunt being asked if Ella was our only child and she said yes. I have been kicking myself ever since that I didn't speak up - but my Mother pointed out (when I moaned to her about it!) that sometimes you just can't change ignorant people!
And I am way overdue a trip to Target!!
Hey how do you put a picture in your profile, so that I'm "no avatar"!
Hi Erika, so great to have you here!!! :)
Avatar - click on Profile on the yellow line under the photos of the kids up top. All your Profile info is there, and that's where you add a photo as your avatar. :)
Stephanie, that is so great, YEAHHHH!!!!!
Ok, everyone, since this thread is now 11 pages and talking about all sorts of media stuff, I'm going to start a new thread...
http://cdhsupport.org/members/viewtopic.php?p=5697#5697
Sounds like a good idea trying to see if Oprah would do a show on CH.
my son is in chicago childrens memorial. we live a hour from there.
I own a website competition called the Fantasy Fights. http://www.webcompetition.net/
I have info posted on the Index page, The FF get's a lot of hits =)
I sent a email to everyone in my address boook also asking them to spread the word.
Hugs
Dakota's Mom Beverly
http://dakota-cody.com/
Thank you, Beverly! :)
Your welcome =) i wont be back on till later this evening, we are going to go see Dakota, I am getting so sick of this hour drive everyday!!
and the gas we go though!!! But, once we are there by him. Its all worth it. Hugs
WOW this topic really took off. You ladies rock. I'm still sending Bryston's story in where ever I can.
Anyone got the Grey's anatomy link handy? I'll keep looking for it too.
Wow, im suprised no one's heard back. I figured that this would be somehting the Oprah show would jump on. I'll join you and write something up. Maybe if enough of us bombard them we'll get some attention :)