I submitted Graham's story when he was an infant... thought the name 'Graham' might get someone's attention... I never heard anything... I'll try again though!!
Printable View
I submitted Graham's story when he was an infant... thought the name 'Graham' might get someone's attention... I never heard anything... I'll try again though!!
Oprah, local news, national news, locals papers, magazines.... please, any free time you have that you can write to anyone - please do! The more media attention to CDH, the better.
A mom told me that the Today show had a interview this morning with a group called that Now I Lay Me Down To Sleep, which are photographers who take photos of cherubs for families at the hospital. Awesome organization, wish I would've seen the show today! I'll look at the video on-line later.
Here is their contact info:
Today Show
30 Rockefeller Plaza
New York, NY 10112
today@nbcuni.com
Ok, let's add them to the list!!!! :)
I saw the Today Show piece.... and cried my eyes out...
I got a response from my e-mail to the Today show and they sent a phone number that they give out to anyone who e-mails a story. (212) 664-4249 - please call this number everyone - at least one of us will get through if we all call! :)
oh..... what about the morning show
with mike and juliet
http://mandjshow.com/
they are always doing great shows and topics!
Great idea, Beverly!
Dawn,
I just emailed the Today show using the email you posted. Now I have never emailed them before.. I had always snail mailed the letters because I didn't have an email address for them. Am I supposed to call them after I email them? I'm confused as to what the number is for?
I was on the phone with the number you gave Dawn and I got an answer...she transferred me and than some women came on the phone and "said please hold..." phone was disconnected!!!
Will try again Monday.
If you e-mail them, they send you a phone number to call to talk to someone about your story. You can skip the e-mail and just call.
Tell your stories and remember to point out that over 2000 babies are born with CDH every year and half of them do not survive and there is little media and research for CDH. That CDH occurs as often as Spina Bifida and Cystic Fribrosis. That we're a group of over 2200 families and we're asking for their help to bring awareness to this disease. Awareness = Research. If you throw numbers at them it will make them listen a bit more. Especially shocking statistics. How many people died in 9/11? (Not belittling that at all!) - isn't that roughly the same number of babies that are born with CDH every year? Every year! And we have no media attention to help these babies.
Did anyone get through on that number for the Today Show?
i got this link sent to me today from one of my friends and really thought you need to see this..
http://www.youtube.com/watch?v=zSPGVmYrjmQ
I so can understand how this mother feels....
This is my way of helping her spread this word of DMD
Hugs Beverly
I would love to see this get out & on TV, what's the latest with the TODAY show?
I couldnt watch the above clip b/c i'm on diaL uP :(
yall need help, let me know , i'll bug them LOL
I got no response from the Today show but I will try again this week!
Our Golf Tournament Event Organizer (she's amazing!) has some connections at a broadcast company (not a show, the whole channel) that she's trying to hook up for the events and hopefully all of CHERUBS and CDH Awareness! Say prayers that something comes of this connection!
WOW! That would be great , I wish I had a connection, i'll have to ask around
I have just recently emailed Oprah about Feeding Issues and mentioned CDH in there as well. Keeping my fingers crossed for an answer. I was also thinking about getting in touch with the Today Show or Good Morning America
ya know, MOntel Williams seems to have a "soft spot" for kids with health issues and I think he has a good reputation, may want to keep him in mind too .
I recently e-mailed the Oprah show with Jayden's story, but no response...I may sent it again since it was a few months ago...keep on sending them and someone should get their attention.
i did too a while ago with no response :(
Jenni McCarthy is on the OPRAH show tomorrow! Parents can send in questions etc.
Do we have any members who's child has CDH and Autism??????
She is also talking about Mum Warriors!
I sent in an email, said I'm a CDH Warrior Mum. Gave a brief history of Liam, talked alot about CHERUBS and CDH Awareness.
I guess Oprah's staff keep turning a blind eye to all our emails / letters but we gotta keep trying!
C'mon all you Warriors - check out Oprah's site and send in a email!!!
xx
I sent an email too Shaz--great idea! One of theses days, CDH will get picked up by Oprah, the Today Show, ect.. I also gave a brief history of Ian, talked about Cherubs and CDH awareness. Like Shaz said, "C'Mon all you Warriers-check out Oprah's site and send in an email!!!" We all our CDH Warrior Moms and have a story to tell about our Cherubs!!
OK..I'm behind on this one too..then again, Ericka's only two months old.
I was thinking about emailing Oprah. I think the smaller outlets, the magazines, newspapers, etc, are also great ideas and would help. Oprah, however, is the BIG TIME. She has soooo many viewers. I think trying all options would be great. I was also thinking of writing to People Magazine. They have a like a healthwatch article in every issue.
http://lettersforcdh.blogspot.com/ They are planning on sending letters on July 15.
The big target for the letters for CDH is the Ellen Show and they (letter mailers) plan on mass emailing Oprah.
The address and email address are on the blog. I have sent this to all my family, friends and my old work. I hope there is a big response!