April 19th Parade of Cherubs in Washington DC - International CDH Awareness Celebrati

CDH Awareness

April 19th Parade of Cherubs in Washington DC

International Congenital Diaphragmatic Hernia Awareness Daily Celebration

Join us as we march in the Parade of Cherubs from the Lincoln Memorial to the Washington Monument to Capitol Hill where we will meet with Congress and raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.

REGISTER HERE - http://cdhawareness.eventbrite.com/

When - Parade starts at 10:00 am at the Lincoln Memorial in Washington, DC on Thursday, April 19, 2012. On Friday, April 20th we will visit the White House.

Where - a full parade route will be posted soon, as well as information on stops on the DC Metro so you can park and ride into DC.

What - we will march 2.7 miles from the Lincoln Memorial to the Washington Monument, past the White House to Capitol Hill. At Capitol Hill, we will tour and meet with Senator Jefferson Sessions, sponsor of our CDH Research Bill. Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.

CDH AwarenessWho Can Participate - anyone who wants to raise CDH Awareness. You MUST register with us to participate! You MUST fill out a form (to be posted soon) before February 29th for us if you wish to tour the Capitol and White House with us.

What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes! For the White House visit on Friday, please also wear CDH Awareness Gear!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - you can borrow wings at breakfast at the hotel at 8:00 on April 19th or purchase your own wings at http://www.savethecherubs.org

Accomodations - we are currently working on hotel discounts. They will be posted by February 20th.

Special thanks to Mandy Sroka Photography for being our official photographer for the even, Chic Events Productions for all their planning help and Alarm Security for sponsoring the wings!

Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness!

CDH Kids Song

I'm a real live cherub but I don't have wings

When I was a baby the doctor had to fix things

My tummy was in my chest and it was hard to breathe

He put it all back and here's where he fixed me!



Congential Diaphragmatic Hernia Research Bill
In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.
Sponsor - Sen. Jefferson Sessions

CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.

Look Up Your Congressmen To find his / her mailing address
Download Letter to Send To Your Senator / Congressman
Include The CDH Research Bill and a photo of your cherub
Sign the CDH Research Bill petition and ask others to sign as well!

Event Registration Online for 2012 Parade of Cherubs in Washington DC

Free Facebook Cover Banner:

CDH Awareness

CDH Awareness
Order commemorative CDH Awareness Gear


Feel free to download this shirt graphic to raise CDH Awareness:

Congenital Diaphragmatic Hernia Awareness

REGISTER HERE - http://cdhawareness.eventbrite.com/

If you can't make it to the parade but want to show your support...now there's a way. Check out the CHERUBS Virtual Parade page to find out how you can participate!

http://www.facebook.com/CherubsVirtualParade

You can participate on Facebook, twitter, Google+, and Pinterest

Dawn, this sounds like it's going to be great! I wish I could come down there and join but you all will be making such a difference that day! I can't wait to see pictures and videos.

PS. I've heard the Cherubs' song before but to read the lyrics, then think "Ericka's about old enough to teach her that" got me a little teary-eyed. THANKS..you really have a way with doing that... LOL.

Good luck with the parade!

We will miss you in DC, Tracy! :( Hope to see you next year in Boston! :)

We now have over 225 people registered for the DC Parade of Cherubs!!!!! YEAH!!!!!!!!!!!!!!! :)

Register for the parade at http://cdhawareness.eventbrite.com/

Is there a hotel that everyone is staying in DC? I live less than 2 hours from there and would like to meet up with certain people and let Dalton meet some other kids like him. I'm not interested in doing the parade but was wondering if there was some sort of meet-n-greet at a hotel that we could pop in for an hour or so.

http://cdhawareness.eventbrite.com/ lists the hotels that CHERUBS has worked out rates with, but I haven't been following to closely to hear who will be staying and who will be driving in for the day.

Here is the facebook link, post on the wall and see who will be attending and who is bringing their kids....https://www.facebook.com/#!/events/348096015213783/.

Thanks Tracy. After posting, I realized that there was a link with all the info. Unfortunately, although I work in Alexandria, VA , Dalton has school and missing that is non-negotiable so no meet-n-greet.

Hope the day was a success in raising awareness!!! Please share your pictures and details!