2010 CDH Conference Schedule - May 13 -16, 2010
About Our CDH Conference:
Expect to learn a lot about Congenital Diaphragmatic Hernia! Meet new friends, see old friends and participate in research for various hospitals.
For safety and privacy of our members, you MUST be a member of CHERUBS to attend. You may register for free at http://www.cdhsupport.org/members
Children are welcome and babysitting services will be provided during conference hours. Volunteer babysitters are needed and all parents who request babysitting are obligated to donate a minimum of 1 hour of volunteer time per child to help out.
The hotel offers free breakfast and shuttle to and from the amusement parks.
Families are responsible for all other meals and all transportation, accomodations and entertainment.
CHERUBS does not charge a conference fee.
Many families of survivors are eligible for grants to cover travel expenses to medical conferences. Ask your child's social worker for more information.
Registration:
Make sure to register with us so that we can expect you! Registration deadline is May 1, 2010.
CHERUBS has a block of 20 rooms reserved at a discount rate at the Summer Bay Resort Holiday Inn Express. They are available on a first come, first serve basis. To book at $65.00 per night, you must reserve a room by April 13th.
If you are coming alone and would like to share a room with another member, visit our forums to find a roommate.
Conference Schedule:
Thursday, May 13, 2010
7:00 - 9:00 pm - Pizza Party and Introductions
Friday, May 14, 2010 - CDH Support
8:00 am - 8:45 am Round Table Discussions Session 1
* For CDH Survivors (choose one)
o Physical and Occupational Therapies
o Feeding Issues
* For Grieving CDH Families (choose one)
o Faith & Doubts In Grief
o Dealing With Anger
9:00 am - 9:45 am Round Table Discussions Session 2
* For CDH Survivors (choose one)
o IEPs for School Age Children
o Early Intervention for Infants & Toddlers
* For Grieving CDH Families (choose one)
o Grief and Siblings
o Dealing With Special Days
10:00 am - 10:45 am Round Table Discussions Session 3
* For CDH Survivors (choose one)
o Dealing with Family & Friends
o Marriage & Having a Special Needs Child
* For Grieving CDH Families (choose one)
o Dealing with Family & Friends
o Marriage & Grief
11:00 am - 11:45 am Round Table Discussions Session 4
* For CDH Survivors (choose one)
o Pregnancy After CDH
o Helping Other CDH Families
* For Grieving CDH Families (choose one)
o Pregnancy After CDH
o Creating Something Good From Sadness
Saturday, May 15, 2010 - CDH Research
8:00 am - 11:00 am - Guest Speakers On Current CDH Research Studies
8:00 am - 9:00 am - Meaghan Russell and Mauro Longani from Mass General
9:00 am - 10:00 am - Speaker Information coming soon!
10:00 am - 11:00 am - Speaker Information coming soon!
11:00 am - 12:00 pm View Research Booths, Sign up for CDH Research Studies
Sunday, May 16, 2010 - CDH Awareness
8:00 am - 8:30 am - "Current and future global efforts to raise CDH Awareness" by Dawn Williamson, President & Founder
8:30 am - 9:30 am - Group discussion on how we can raise more CDH Awareness as a community
9:30 am - 10:30 am - Group discussion on how families can raise CDH Awareness in honor and in memory of individual cherubs.
10:30 am - 11:00 am - Saying Good-byes
