This afternoon Senator Jeff Sessions formally introduced our $50 million Congenital Diaphragmatic Hernia Research Bill on the floor of the U.S. Senate!! At 03:58:04 of this video you can view Senator Jeff Sessions formally introduce the bill on the floor of the U.S. Senate.
History was made today!! Please go check out this amazing news!!! Thank you Senator Sessions!!
http://www.c-spanvideo.org/program/SenateSession5027
All the information on the CDH Research Bill can be found at the link below, including the Bill itself, Senator Sessions' video, link to the video and a letter template for EVERYONE TO PLEASE WRITE YOUR SENATORS AND ASK FOR SUPPORT OF SENATE BILL S.3396!
We need everyone's help to get this bill passed! Please write, share our stories, ask others to help. These babies lives literally depend on us right now to get them research funds! We cannot let this once in a lifetime opportunity pass us by. Please write and ask all CDH families and friends that you know to write as well!
http://www.cherubs-cdh.org/bills/
Ditto what Tracy said!!!! This is something that is so quick and easy and only costs the price of a stamp!
Please ask your Congressmen to support Senate Bill S.3396
Go here to track the progress of the Bill - http://www.govtrack.us/congress/bills/112/s3396
Look Up Your Congressmen To find his / her mailing address - http://www.house.gov/writerep/
Download Letter to Send To Your Senator / Congressman - http://www.cdhbills.org/letter-cdhresearch.doc
Include The CDH Research Bill and a photo of your cherub - http://www.gpo.gov/fdsys/pkg/BILLS-1...112s3396is.pdf
Sign the CDH Research Bill petition and ask others to sign as well! - http://www.change.org/petitions/to-i...agmatic-hernia
To do several of these things: Go to http://www.cdhbills.org/ and find your Senator's contact information. Call their offices, make an appt. At the least, you will speak to their health aide. Take a copy of the bill with you (also on the site). Take a photo of them and you and your cherub or your cherub's photo. Write up your cherub's story and how you are helping with this bill by asking for support. A one page story/press release. Then march into your local newspaper or TV station's office and ask to speak to a reporter. Tell them your story in person. Hand them the printed story (with your contact info) and your photo. You can use the letter template (on the site too) to help with the story paper if you need it. MOST IMPORTANT is talking to the Senator and/or Aide! We need their vote!!!!!! Then try the media. The worse the media can say is no.
The Green family will for sure be sending in our letters very soon. Loved the picture above. So cute. Great job.
Working on trying to get in for a meeting with Sen Merkley from here in Oregon as he is on the committee we have to get it through. I already have several folks interested in going if we can get a time. Keep your fingers crossed!
How are those letters going? Senator Sessions has told us that the bill should go to vote before the elections - if we make it through the committee! So we need those letters going!!!!! Have you written yours yet? Need more info? http://www.cdhbills.org/ has all the info to get started and it's so EASY to do!!!!
Got my letters out today and helped my mom write hers! :)
Mine are all done. I've also sent in e-mails as well.
The Senate CDH Research Bill Still Needs Your Support!
Go to http://www.cdhbills.org for all informatin about Senate Bill S.3396!
PLEASE WRITE TO YOUR SENATORS AND SIGN THE CDH RESEARCH PETITION FOR Senate Bill S.3396 for Congenital Diaphragmatic Hernia Research!
Congential Diaphragmatic Hernia Research Bill
In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.
Sponsors - Sen. Jefferson Sessions (R-AL) and Sen. Ben Cardin (D-MD)
CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.
Look Up Your Congressmen To find his / her mailing address
Download Letter to Send To Your Senator / Congressman
Include The CDH Research Bill and a photo of your cherub
Sign the CDH Research Bill petition and ask others to sign as well! Here is the link to the petition, http://www.change.org/petitions/in-s...HERUBS+Members