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Type: Posts; User: KathyJohnson

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  1. My daughter (Gavin's mom) is sending her letters...

    My daughter (Gavin's mom) is sending her letters this week, too. It is so weird to think that I only learned about CDH 4 weeks ago today when Gavin had his surgery and now I know enough to write to...
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    Renee, My grandson was diagnosed with CDH and...

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    Danielle my heart breaks for you for the loss of...

  4. I have just written letters to my 2 senators and...

    I have just written letters to my 2 senators and 1 representative for South Dakota. I'll put them in the mail tomorrow. Since I'm new to the board, I didn't know about the bill until recently. Thanks...
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    I am pretty new to this board, but I 'm so glad I...

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    Jennifer, Thanks for sharing your insights. We...

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    Tracy, Thanks for sharing your experience....

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    Tracy--thanks for your reply. I especially...

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    As I understand it, when volvulus occurs the...

  10. Sticky: My name is Kathy and my daghter and her family...

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    CDH just diagnosed at 11weeks old

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