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    9 months later

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    https://www.facebook.com/groups/grievingcdhfamilie...

    https://www.facebook.com/groups/grievingcdhfamilies/

    I can't access that. Facebook account to add would be : https://www.facebook.com/ourfamily.wilson

    Thank you.

    Sean
  3. We are over in the PICU now and are on ECMO. He...

  4. Prayers and thoughts for Reilly Wilson

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    Siberian Tiger with CDH?

    http://www.news1130.com/2014/01/03/sweetie-the-tiger-had-a-hernia-necropsy/

    A sad passing the other day of a tiger in a local zoo which seems to have had a diaphragmatic hernia from birth.
  6. Raising awareness by running the marathon... who do I talk to?

    I was reading the 2013 newsletter (us2.campaign-archive1.com/?u=d4fef673c3618e73e21957cbd&id=52388e8502) and saw that they raised awareness at the NYC and Baltimore marathons.

    I'm up in...
  7. Hi Chris, we are in Canada and at 22 weeks...

    Hi Chris, we are in Canada and at 22 weeks gestation with a LCDH baby boy.

    What vaccines or flu shots should the rest of the family be getting to help make our home a healthy home for when our...
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    Received our care package today

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    In our recent meeting with the Dr he said that...

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    Welcome Sharna, we are in a similar boat, now at...

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    Thank you all for the welcome and good wishes. ...

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    Hi from the west coast

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    A few days after diagnosis

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