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Thread: 2008 CHERUBS International Member Conference & Events!

  1. #41
    Dawn,

    I booked my room! Hopefulluy we have the discounted rate!

    I still have my Disney photo album in the cabinet above my bed. I know I stuck other pictures in there from other get-togethers also. I know that as I was packing a lot of my trailer up, I came across several other photos of get-togethers at Kluge. I'll try to find them all and bring that photo album with me. I know I sent you a ton of the Disney and other get-togethers, but have no clue as to where they are now since that was about 3 computers ago - back in the 395 days before Windows! LOL

    I even found the picture of Brandon dressed up in one of Adrienne Dumas' tu-tu pink skirts! They were so cute together! Tara, I'll have to definitely bring those pictures to show Brandon!
    {o/} ? /_?? Judi- Mommy to Jennifer Melissa- m/c 2-80 and Christopher Michael- 2-2-1989- left side CDH- born in Heerland- Holland- 1 repair w/dura- lived 19 hours. Buried in Milford- Connecticut. MD- VA- DC & CT State Representative. Mommy's and Mama's Guardian Angel and Inspiration! (Still trying to figure out the coding to put Christopher's Ribbon here also BUT IT'S NOT WORKING! SIGH & URGH!)

  2. #42
    I found that photo too! I just added it to a video. http://www.youtube.com/watch?v=JtOElZcUyVM

    I started working on Shane's video today... harder than I thought it would be but it's done and I'm uploading it now.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #43
    Dawn,
    Shane's video is just beautiful!
    You have done a brilliant job...
    Shane's smile and laughter will stay with me.
    Thankyou!!!
    Shaz
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  4. #44
    Dawn that is an amazing video. It made me smile to see Shane's journey. It was such an adorable kiddo, who overcame so much. Remember he is your son, not was your son. You will always be his mommy.
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  5. #45
    Dawn - That video is great. Thanks for all you do. Even though Baer has had a great outcome, I don't know how I would've made it without you all. That tread that Kara started about survivors greiving, made feel like I was not alone and it was ok to be feeling what I was feeling. I was going through big time depression and you all at CHERUBS really pulled me through. Guess you never know who you are sent to help.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  6. #46
    Dawn--did we make the 15 rooms?
    I just watched your video of Shane and it is amazing, beautiful, brillant.
    Thank you do much for sharing it with us.
    I have posted about it--but I think really no words can describe just how perfectly done it is.
    Shane's legacy will live forever and you are wonderful for all you do in his memory and for all you do for CHERUBS.
    Thank you Dawn--always know how we all appreciate you and how lucky we are that we are all in this CDH journey TOGETHER.

    Take a stand against CDH. It is a great video also.
    Is there two or just one?
    I see two--so just wondering?
    May I use Shane's video for the DVD Tania and I are working on? Also may I use the Take a Stand Against CDH?
    Let me know if this is ok and if there is indeed two Take a Stand Against CDH.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  7. #47
    Steph, this is off topic, but since you are on this thread, did you get my volunteer forms yet?
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  8. #48
    I am now watching the 2nd Take a Stand Against CDH? I should be able to figure if they are the same.
    It has been one of those days!!!!lol
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  9. #49
    Lynne-we have not received your volunteer rules yet.
    I check with Dawn everyday and I PROMISE as soon as we get them--we will get you started.
    I am thinking they should be there very SOON!!
    I LOVE your excitement!!!!

    I figured out that there is only one video of the Take a Stand Against CDH.
    It really shows that together we can get through this CDH Journey TOGETHER!!
    Dawn--hands down girl--you did a FANTASTIC job with Shane's video and the Take a Stand Against CDH video.
    Oh I am SO very excited to put all the pictures of CHERUBS and all the video's.

    GUESS WHAT---we will be able to see it at conference. YEAH.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  10. #50
    Stephanie, I wonder if I mailed them to the right address. It has been over 2 weeks. Maybe I should send them again.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

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