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Oh my goodness!! That's the first time I've looked at some of the YouTube videos. They are truly amazing. Kate you couldn't have done a better tribute for Shannon, I'm crying right now. I hope I can put one together soon for Lily.
Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
I LOVE the video. Its so precious!!! I love to make those videos!! Here is Aydas video
http://youtube.com/watch?v=r-VPa4FABC4
I want to update it once I get more pictures to.
Hey, I am making this huge poster for my fundraiser and I am trying to get as many pictures of CHERUBS that I can. So far, I have 3 babies, but I would like to have more. If you would like, just email them to me.
shanellbrowand@live.com
Loves,
Shanell
Shanell Browand- CHERUBS Idaho State Representative, mommy to Ayda Rose Browand, our one and only (LCDH- 4 CDH surgeries, 2 surgeries to remove fluid from around her heart, has severe hearing loss, asthma, febrile seizures, weak immune system)
Shannell, I would love to send you some of Shannon's pictures, I don't have any saved on my laptop so as soon as I can get my lazy butt down stairs to the other computer I will get you some!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Yeah, there is no rush on the pictures. I am going to ask for pictures up until a week before my fundraiser. I am the same way with my laptop. I like mine only, but sometimes my husband likes to use it, but I am to lazy to go into the other room and use the desktop!
Shanell Browand- CHERUBS Idaho State Representative, mommy to Ayda Rose Browand, our one and only (LCDH- 4 CDH surgeries, 2 surgeries to remove fluid from around her heart, has severe hearing loss, asthma, febrile seizures, weak immune system)
I'll send some too Shanell. Ayda is so beautiful!
Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
I finally went through Graham's ICU video and put something together....it was harder than I thought... I didn't realize how much video I'd taken...
here it is....
http://www.youtube.com/watch?v=Vle_oLYp2bc
Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/
It was done perfect. I cried.
Thanks so much for sharing Cristin.
Ok, I have a question--which video would you like me to use for the video I am working on?
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
I meant to add--Cristin--Graham is a miracle!!! I know you know this--but to go through ECMO twice----HE IS AMAZING!!!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Cristin,
Graham's video is perfect!
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
Cristin,
I loved Graham's video, he is a gorgeous looking child. I really liked how you explained ECMO was great for me. I see a lot of you write about your babies being on ECMO and I did go in to the research section and saw it was a lung/heart bypass machine. But I didn't realise that it was a last resort as you put it in your video. So thanks, I'm constantly learning. He is a little fighter!!
Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
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