Stay Connected 
Kayla-s video is SO very beautiful.
I would love to include it in our DVD of pictures and video's of CHERUBS.
SHe is such a miracle!!! Thanks for sharing the video with us.
May we use it for the CHERUBS picture/video that we are working on?
It will be such a great way to get CDH Awareness out there.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Yeah, then I can have Kaylas video at my fundraiser! yay
Shanell Browand- CHERUBS Idaho State Representative, mommy to Ayda Rose Browand, our one and only (LCDH- 4 CDH surgeries, 2 surgeries to remove fluid from around her heart, has severe hearing loss, asthma, febrile seizures, weak immune system)
Stephanie, sure! You can use Juan Pablo's video for the DVD you're making. How can I get a copy of that DVD when it's done?
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
Wow...I missed alot!
I have a slideshow of Jeremiah from his memorial but I haven't gotten music to it or anything...I did it on powerpoint. Is there any way anyone can use it?
Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png
Kerri,
That was beautiful. I loved the song!! I also love the picture of her with the kids & the one with the glasses. They are all cute.
Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
Thanks Fer--you are on the list!!
Sarah-can you upload Jeremiah's slideshow here and then Dawn can upload it you youtube? Then we can use it for the picture/video DVD.
I am going to make a post with the list and PLEASE let me know if I have missed anyone.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
thank you all so much. I thank god everyday for her. She is still alot of work lol but hey its all worth it. YEs stephanie you can use this for the video. Am i able to get a copy of that when its done?
You bet you can get a copy!!
Thanks for letting us use Kayla's video.
Dawn--when you have time can you put Kerri's video on youtube????
Not like you don't have anything to do!!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Posting Permissions
Reply With Quote
