I'm so glad they're helping you, Amy! Please take some to your doctors to give to other parents as well. Thank you for helping to educate so many about CDH!
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I'm so glad they're helping you, Amy! Please take some to your doctors to give to other parents as well. Thank you for helping to educate so many about CDH!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
The brochures look wonderful. They really help explain as to what CDH really is without being so in depth.
Thank you Dawn for doing this.
Jode
Jode and Mike Wells we miss our Judy Keona every day. Get your free <a>online pregnancy calendar</a> from <a>WhatToExpect.com</a><br><img>
They look amazing!!! great job!
Kristin Morrow- mother of Landen James 9/18/07 (LCDH- diagnosed at 19 weeks in utero- CDH repair at 4 days old- chest tube due to secondary pneumothorax for 6 days- HFOV for 8 days- inhaled nitric oxide for 6 days- high flow nasal cannula oxygen for 14 days; battled drug withdrawl & an oral aversion- NICU stay 28 days) http://i102.photobucket.com/albums/m.../cdhribbon.jpg
I was able to take several of these to the PICU this past week as well other info, and they were going to forward some the the NICU at Spectrum as well. I need to make a visit to the NICU, but it is in a different building tower than the PICU and PEDS where my nephew is at.
Mom to CHERUB Jonathan Luke- who lived for an hour on Nov. 7- 1997. RCDH- hole in the heart- IUGR- 5 lbs. 15.7 oz.- 11 inch umbilical cord! Also mom to Allen- 3-13-99- Trevor 2-20-02- Brent 4-19-04. Michigan State Rep- Non-Survivor On-Call Volunteer.
150 delivered to St.Francis EOPC( nicu)! There is an ECMO baby right now there AND 1 cdh baby a week
I met the 2 ECMO nurses: judy something and I forgot the others name. I do have to say, It was so hard. The memories flooded back. Walking the hall. Seeing the pics of the Nicu babies on the wall...the 'swoosh' of the doors, the smell. We all remember the smell.
They have a parents nite next week and she will make it a point to pass them out to the parents.
ALSO...Dawn I told them I was your Oklahoma rep so you need to do something about that
They also said Dr.Jay has your site on their computer. Does Dr.Jay ring a bell. He is the doc along w/ Dr.Renne who do the infant 'repairs'. Maybe I'll make more copies and bring them to their office.
I'm sending some to our favorite perinatologist, so I just NOW got a look at this. That's Nicole on there! I feel like an idiot for not noticing before!
Chris Tennyson Married to Matt 12 years Mom to Nicole- born 01/06/07 with LCDH- diagnosed in utero at 18 wks. Has g-tube- reflux- eosinophilic esophagitis (EE)- and scoliosis- but one happy and busy toddler! http://i296.photobucket.com/albums/m...s/IMG_5502.jpg
LOL, we have so much stuff on this site it's impossible to notice everything. So this means your perinatologist will be more likely to hand them out with her photo in here!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
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