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Thread: CDH Awareness Project - Street Names Across The Country!

  1. #11
    I hope you can get both counties to do this!!!
    We have to get ONE town in the US to name a street after CDH!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  2. #12
    This week I found out the easiest way to get a street named - go straight to home builders! They name the streets on their developments. They deal with all the town/county paperwork. Just have to find a builder with a new development who is open to raising CDH Awareness! They'll do anything to gain extra media coverage or attention to their houses for sale.

    Or we can do the Adopt A Highway thing to promote awareness too!

    As soon as all these events are over, I'm making this my big project for the fall! I'm determined to get at least 5 streets in NC named "CDH" or something to that effect to raise awareness. This will be awareness all year long, permanent and government approved.... perfect for all CDH families to join in and do!

    Ok, who is going to have their photo in the newsletter first posing beside our first CDH street sign?
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #13
    I have 3 builders almost talked into CDH street signs! With developments in 3 different towns so that's good - can't have more than 1 street with the same name in the same town. Need to find some type of metal plaque that we can post under the street signs that explains what CDH is. Anyone have any ideas?
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  4. #14
    I want to live on CDH st!!!

    Alyssa~ 7/19/2004; LCDH- ECMO 11 days (VV 5 days)- (VA 6 days)-To date, the only Double ECMO Case at Helen DeVos Children's Hospital, Vent 19 days- Osc. Vent 1 day- Jet Vent 1 day- Oxygen 20 days. 64 days in the NICU, came home on NG tube, continuous drip feeds. 02/28/2005 Fundoplication and G-tube placed.

  5. #15
    This is a great idea. I would love to have this in our town. Does anyone have a letter that we could read to get an idea of what to send into our Mayor?
    Mother to Jayden. Diagnosed at 18 weeks with Right CDH- hypoplastic right heart- heterotaxy syndrome- polyspleenia- dextrocardia- situs inversus. Vent 38 days- Nitric Oxide 10 days- CDH repair at 4 days- Open heart surgery at 3 1/2 weeks- came home after 47 days at U of M. He came home on a NG tube- which he had for 6 1/2 months. Visit www.carepages.com CarePage name MJaydenR to read more about Jayden and to see pictures!

  6. #16
    Oooh I will have to look into that, we have a new development going in near our home.
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  7. #17
    Dawn--I hope this works out!!!That would be AWESOME!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  8. #18
    I'll try to come up with a letter, Katie. Really though, it's easier to go to a developer than the mayor or town council - less paperwork for you since the developer is doing it anyway. Just need to convince them why it's a good idea to have CDH St. (or Rd, Lane or whatever). I found out that for big developers they just pull names out of a hat they've named so many streets so they are open to doing this - and they love the idea of publicity coming to their new neighborhoods. Plus it gives them a "family" feel as it shows them supporting a children's charity. And, it doesn't cost them a dime more than it would for any other name they would've used.

    Or... here's an idea... if you don't want to use CDH St, you can't use your cherub's name. If you post a sign with it about CDH, you're still raising awareness. You can have an unveiling ceremony, etc. Ideally, talk the developer into 2 streets -one CDH, one after your cherub and you can put up a sign at the crossing.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  9. #19
    oohh great idea!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  10. #20
    Now that the events are over, I am going full force with the CDH Street Sign Awareness Project! This is especially close to my heart because Shane was OBSESSED (serious caps needed here) with Sesame St. so having CDH St. and Shane St. would be so special to me. I'm bound and determined to get at least 5 CDH St's in NC before spring!!!!

    Who else wants to participate in this?

    And our on-line research gurus (hint hint Kara and Darlene and Barb)... can we find some metal sign store so that we can create a CDH awareness plaque of some kind to put under the street signs? Something nice like a small historical marker or something to that effect.

    Ideally, I'd love to see a CDH Awareness Street Sign in every state by the end of 2009! With dozens and dozens of photos of you all cutting ribbons at your streets for ceremonies honoring / remembering your cherubs!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

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