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Thread: Happy Birthday Jeremiah Car Show

  1. #11
    Great-I am happy I could help-this sounds like a great event.
    Please do keep us updated on how things are going and when the event takes place-take lots of pictures!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  2. #12
    Sarah, this is so wonderful!!!!! I got your e-mail and absolutely you can take brochures and set up a booth or however we can help and raise CDH Awareness, we are there!!! I'm sure Tara has e-mailed you by now and we have lots of Ohio moms here that might want to help out as well! I only ask one thing - that you take photos for our newsletter and site!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #13
    I can handle that. I feel awkward asking CHERUBS to come because its a fundraiser for the hospital and RMHC, and I know Cherubs runs on donations but I had to submit the paperwork listing any company who would benefit financially from the event, and I figured if there were three beneficiaries they would think we couldnt possibly raise enough money to make it worthwhile. They ask *everything* on these forms. So, my thinkning is that if this is a decent success maybe Cherubs can be a beneficiary next time around. But, regardless its still a good awarness project.
    Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png

  4. #14
    Sarah, we're just happy you're raising CDH Awareness! We would love to be a part of this with our brochures or members attending or whatever we can do. We've participated in other events where no donations came to CHERUBS and the money isn't the focus to us at all. Many of us met for the first time in person attending an ECMO Fundraiser in DC for National Children's Hospital and none of that money raised went to CHERUBS. Yes, we need donations to keep things going like the site and phone, etc... but those are just necessary to keep doing what is important - raising CDH Awareness and helping CDH families!

    I'm so glad you're doing this in memory of Jeremiah... just don't push yourself too hard ok? You still need time to grieve and I'm the last person who should be giving this advice as I certainly didn't follow it myself when Shane died... but you can't run from grief by keeping busy. It's great to be busy and do think in Jeremiah's memory but take time when you need it too, ok?
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  5. #15
    When you have details and a logo ready, please send them to me and we'll add them to the site to help advertise your event.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  6. #16
    I have the flyers done. Am emailing one to Dawn so she can post it. Cant exactly figure out how to post one in the forum, but if theres a way im sure Dawn knows. I decided to have it at the state park because the village of Cardington wants a million dollar insurance coverage, and after spending a few days getting quotes Ive realized to do what i want will cost between 4 and 6 hundred dollars just for about 6 hours of insurance. Im trying to raise money, not spend what I dont have. But when I think about it it would probably be easier for out of towners to go to the park anyway, since its right off the freeway exit. I picked out the trophies and dash plaques today. Jeremiahs picture will be on the plaques, and the lady making them is willing to donate them, so all Im paying her for are the trophies!! that made my day!
    Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png

  7. #17
    Sarah-this is great news and you are doing a great job on getting everything set up!!!
    Hats off to you!!
    Take a picture of the trophies and dash plaques-we would love to see them and I can't wait to see the flyer!!!
    What a wonderful way to honor your son!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  8. #18
    I emailed the flyer to Dawn, Im not computer literate enough to figure out how to post it on the fourms. Actually, Im not computer literate much at all, but I can put on a good show.
    Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png

  9. #19
    I can't wait to see them! I am so glad you are chugging right along with this! This is great!!
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

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