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Thread: We did it!! LaneyKate is going public!!

  1. #21
    I am in tears! It may be the pregnancy hormones though! Either way, Carrie you did an AWESOME job! I loved the story. What an inspiration you are! I just loved it, I can't say it enough! LaneyKate is ADORABLE!! Thank you so much for that Carrie.
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

  2. #22
    WOW! good job! Keep us posted.

    We were watching House yesterday after the superbowl and say a commercial for a news story about California babies dieing from a common birth defect. I have been looking all last night and this morning for more info. I hoping it's about CDH. I'll let you all know if I find anything.

  3. #23
    Im glad we were able to get it out there, especially here. like i said, parents in this area are given completely outdated info by a specific dr. and we have turned him definetly. but still any info out there is good. Information during a time like we've had is so critical and impowering, atleast for me.

  4. #24
    That's aweosme Carrie, after what you have been through the past couple months, you deserve to feel so impowered by something that means so much to you!
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

  5. #25
    Amazing video! congrats for spreading the word about CDH. I plan on trying to get something going here locally in Phoenix, AZ. We've been trying so hard to reach the national public with our letters...I thought it was time to go to the local news stations and start there! Way to go Laney Kate!! She is soooooo cute!
    Kristin Morrow- mother of Landen James 9/18/07 (LCDH- diagnosed at 19 weeks in utero- CDH repair at 4 days old- chest tube due to secondary pneumothorax for 6 days- HFOV for 8 days- inhaled nitric oxide for 6 days- high flow nasal cannula oxygen for 14 days; battled drug withdrawl & an oral aversion- NICU stay 28 days) http://i102.photobucket.com/albums/m.../cdhribbon.jpg

  6. #26
    I don't think I posted about this but I did want to say that I saw it and thought it was just wonderful! LaneyKate is adorable!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

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