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Thread: Last Call for Newsletter Submissions! And other things...

  1. #1

    Last Call for Newsletter Submissions! And other things...

    If you have the following, please get them in! membership@cherubs-cdh.org

    - New Arrivals (cherubs and siblings)
    - In Memory of
    - Newsletter Sponsorships
    - Stories
    - Photos
    - Articles
    - New State / International Reps and On-Call Parents (you have to get your signed rules in so please fax them to meet the issue deadline!)
    - Event Info

    Please get them in by tomorrow at noon to make this issue! Thank you!!!

    On another note - I've been bogged down with work stuff, the newsletter and event planning this week so I'm behind on posts and e-mail.

    The good news is though, we have had over 75 local volunteers / sponsoring companies to come forward for our July events! This is wonderful - but a little overwhelming so I'm trying to sort it out. Please bear with me.

    Shelly Evans and Stephanie Olivarez, our incredible Volunteer Coordination Dynamic Duo will be contacting all volunteers and those who want to volunteer. We have a ton of positions that need to be filled, lots of committees that need leaders, lots of positions who need work done and much more. As Stephanie has said "CHERUBS can only be as good as our volunteers!" and she is so incredibly right! Some positions can take less than an hour a month so please consider volunteering! We especially need someone with a lot of enthusiasm to start the Street Sign Campaign going! I expect to see all volunteers posting in the private volunteer forum.

    About forum privacy... some of you have asked and I've heard rumors about our site privacy so let me lay those to rest. The only forums that are not private are our News and Awareness & Fundraising forums. Just those 2. You can log out to see if you can read any others. You must be logged in. The search engines can read some forums but only those that are not private. They may post a few words here or there on search engines - this is great, it brings more families to CHERUBS. But you must be a member to log in and read them. The private forums - you must have permission to even see that they exist. These are the Breath of Hope / Congenital Diaphragmatic Hernia Awareness forum and the volunteer forums. No one without permission can see anything on those forums. The search engines still have some BoH posts in their engines from before they went private - but they are old and can't be read without membership. Also, CHERUBS does not give out or sell member information to anyone. Period. Never have, never will. So that's it. You are always safe here at CHERUBS.

    I am still working on the personalized CDH ribbons, I will have those out by tomorrow!

    Does anyone have the latest version of MS Publisher? If so, please e-mail me. I have a file I need to edit and I don't have that software and would be ever so grateful for some one to edit this for me.

    If you are owed a t-shirt from volunteering or a contest - please e-mail me your size and color preference ASAP! We are starting to run out of some adult sizes so it's on a first come, first serve basis!

    Plus, we have more logos in our cafepress shop just for the doctors and nurses who take care of our cherubs. Show your appreciation to them while also raising CDH awareness and promoting your favorite charity - which of course is CHERUBS, right? http://www.cafepress.com/cherubs

    I will get caught up on all posts and e-mails by tomorrow!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    I need submissions by midnight tonight please! Stories, photos, etc!

    I also need any sibling new arrivals or cherub new arrivals! If your membership form / profile isn't updated with your cherub's birth then I won't have him/her listed in the newsletter.

    Also, you have to give publishing permission on your form / profile or your cherub won't be listed at all in the newsletter (49 new members did not give publishing permission so their cherubs will not be listed). And whatever name you listed for your child on your form / profile is what will be on the newsletter. If you listed your cherub's name as John S. instead of John Smith, then it will be in the newsletter as John S. So please keep this updated!

    If you haven't updated your profile before last week and want to include your child in the newsletter, please e-mail me! dawn_torrence@cherubs-cdh.org
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #3
    Senior Member
    Join Date
    May 2007
    Posts
    2,446
    Blog Entries
    50
    Dawn-did I ever send in the pics and info on Gabe's packet party and the truffle sale? I know you had asked for it but now I can't remember if I sent it in.
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  4. #4
    I think I gave publishing permission. Do you want entire stories of the Cheurbs? I'm not sure what you usually include in the newsletters.
    Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png

  5. #5
    Corin - I have the packet party photos and Makayla's name for the New Arrivals, but I don't think I have truffle sale photos or a short write-up for it (2 or 3 sentences pretty please)? Thanks, Corin!!!!

    Sarah - yes full stories, about 1 or 2 typed pages. The stories posted here in the stories section are from our newsletters so you can get an idea there of what we print. Publishing permission is on your profile, and yes, you gave permission. Thank you!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  6. #6
    Senior Member
    Join Date
    May 2007
    Posts
    2,446
    Blog Entries
    50
    ok, thanks, I will get that in
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  7. #7
    This is who we have as new members since the last newsletter in November. If your cherub is not listed then you need to check your Profile and give publishing permission and you need to e-mail me to let me know to add him / her.

    Baby Abramowitz
    Azaleah Alcocer-Maestes
    Corinne Emily Alexander
    Gabriella Wesley Alicea
    Iselin Utigard Andersen
    D.Vishva Balaji
    Kylee Jean Barber
    Nathan Barber
    Jack Nathan Bass
    Dominick Aaron Beach
    John Mark Bennett
    Tayla Jane Beswick
    Caylor Rebecca Bird
    Elisha James Bold
    Landon Tyler Boothe
    Harrison Michael Bowden
    Eliza-Rose Branch
    Jonathan Jeffrey Brandenburg Jr
    Hadden I.Brown
    Joshua Isaiah Candelario
    Marcus Ray Carrillo
    Adele Rosalie May Carty
    Dakota Sherdell Gene Cawvey
    Cooper Michael Childers
    Bobbie Jo Ann Chitwood
    Liam K.Clark
    Sophia Marie Clark
    Tyler James Clewes-Pritchard
    Hunter Thomas Cobb
    Kailen Abigail Collier
    Myah Rose Collins
    Kaine Michael Cox
    Rachel Grace Cox
    Hayden Alexander Crites
    Luke James Daigle
    Madison Sarah Dance
    Jackson Dean Dandurand
    Rhiane Kumar Debnath
    Abigail Nicole Dennis
    Jeremiah Isaac Deskins
    Jamie Campbel Docherty
    Margaret Kathleen Dowtin
    Benjamin Doyle-Newe
    Ethan Michael Driller
    Kylie Don't Know Dudley
    Clodagh Elizabeth Dunne Byrne
    Lily Irene Ellis
    Mary Janis Elmore
    Elijah Faust
    Breeanne Ferrie
    Olivia Joan Therese Fitzpatrick
    Josephine Katherine Fox
    Cain Anthony Fredricks
    Baby Furnivall-Price
    Mckenna Meredith G.
    Analisa Angelique Garcia
    Cooper Alexander Gerhardt
    Matthew Brian Gislason
    Lily Helena Golding
    Juan Pablo Gonzalez
    Bethany Michelle Griffith
    Elijah Brian Harkins
    Ellianna Nevaeh Harris
    Angela Suzanne Hauenstein
    Maria Guadalupe Hedgepeth
    Collin Scott-Patrick Hendricks
    Lilah Rae Henry
    Harry James Hicks
    Adrian Pietro Higueros
    Annie Lee Hollinshead
    Robert Kevin Hood
    Joy Ann Hooper
    Matthew Glenn Hueser
    Gage Clifford Dewayne Hunt
    Evelyn Marie Hutchins
    Morgan Marie Jackson
    Toni Ann Jacob
    Reese Sophia Jimenez
    Matthew Kurtis Jones
    Mia Rose Kabler
    Gabriella Keena
    Kyra Maxime Keller
    Wyatt James Koger
    Trenton Michael Lewis
    Mason John Linehan
    Michael Joseph Lovejoy
    Sean Matthew Lutz
    Jessica Hope Macleod
    Gage Jonathan Manes
    Baby Marchand
    Sam Oliver Matthews
    Kayden Charles May
    Connor Joseph Mckenzie
    Alex Steven Douglas Mendoza
    Lauren Michelle Meyers
    Michael William Micallef
    Makenna Nicloe Michael
    BabyM iller
    Logan Charles Minch
    Mark Owen Royal Moore
    Zachary Tyler Moran
    Noah Wayne Morano
    Baby Moriarty
    Spencer Andrew Morton
    Leah Claire Mostek
    Alexander Joseph Nazareth
    Emma Mackenzie Ava Newell
    Baby Newman
    Jabriel Christopher Nicholson II
    Eliza Nicol
    William Jo Nicol
    Lucas Nicol
    Alison Joanne Parker
    Jack A Parris
    Owain Douglas Payette
    Baby Frederick Payne
    Vito Robert Pensavecchia
    Mikaihel Enrique Perez
    Elle Susane Margaret Phillips
    Josephine Carmella Quick
    Macy Tia Khyra Radford
    James Lawrence Randazza
    Maria Elizabeth Redfoot
    Jebediah Landon Rine
    Christopher Louis Rogers
    Kayla Nicole Rubio
    Bennett Rezso Russell
    Caleb Michael Russell
    Madeline Jo Rutheford
    Addison Elizabeth Ryan
    Baby S.
    Logan D Saienni
    Julia Sophie Salazar
    Blake Eaton Schauermann
    Alexis Marie Schirling
    Jacob Edward Sedgwick
    Sneha Anne Senthil
    Baby Simpson
    Dylan Palmer Skeer
    Brooke Robin Sroka
    Riley Koen Stafford
    Tinaya Jean Stuart
    Matthew Joseph Swartout
    Luke William Talboys
    Marco Telesca
    Evan Andrew Tessmer
    Christa Rizpah Thovson
    Jesse Christian Toth
    Lorenzo Santos Valles
    Seth Don't Know Van Dyke
    Gavin Robert Vanbrocklin
    Trey Lamont Vance
    Yanis Wesley Vuillard
    Liam Allen George Walker
    Erik Benson Weber
    Eleanor Grace Weldy
    Judy K. Wells
    Haile Elizabeth White
    Leah Marie Williams
    Nicole Kaylynn Wright
    Kylie Shay Wyatt
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #8
    This is who we have as in memory of (joined since November or passed away since November). If your cherub is not listed then you need to check your Profile and give publishing permission and you need to e-mail me to let me know to add him / her.

    D.Vishva Balaji
    Nathan Barber
    Caylor Rebecca Bird
    Jonathan Jeffrey Brandenburg Jr
    Joshua Isaiah Candelario
    Tyler James Clewes-Pritchard
    Myah Rose Collins
    Hayden Alexander Crites
    Abigail Nicole Dennis
    Jeremiah Isaac Deskins
    Margaret "Maggie" Kathleen Dowtin
    Ethan Michael Driller
    Juan Pablo Gonzalez
    Ellianna Nevaeh Harris
    Collin Scott-Patrick Hendricks
    Harry James Hicks
    Adrian Pietro Higueros
    Annie Lee Hollinshead
    Matthew Glenn Hueser
    Evelyn Marie Hutchins
    Morgan Marie Jackson
    Reese Sophia Jimenez
    Kyra Maxime Keller
    Michael Joseph Lovejoy
    Sean Matthew Lutz
    Jessica Hope Macleod
    Gage Jonathan Manes
    Sam Oliver Matthews
    Alex Steven Douglas Mendoza
    Logan Charles Minch
    Spencer Andrew Morton
    Alexander Joseph Nazareth
    Jabriel Christopher Nicholson II
    Baby Frederick Payne
    Vito Robert Pensavecchia
    Mikaihel Enrique Perez
    Bennett Rezso Russell
    Dylan Palmer Skeer
    Marco Telesca
    Christa Rizpah Thovson
    Jesse Christian Toth
    Gavin Robert Vanbrocklin
    Yanis Wesley Vuillard
    Judy K. Wells
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  9. #9
    This is who we have as new arrivals (joined since November or were born since 1/1/07). If your cherub is not listed then you need to check your Profile and give publishing permission and you need to e-mail me to let me know to add him / her. Siblings are marked with a *. Yes, we include siblings as well so please let us know if you would like to add one!

    D.Vishva Balaji
    Nathan Barber
    Landon Tyler Boothe
    Harrison Michael Bowden
    Marcus Ray Carrillo
    Adele Rosalie May Carty
    Dakota Sherdell Gene Cawvey
    Sophia Marie Clark
    Hunter Thomas Cobb
    Myah Rose Collins
    Kaine Michael Cox
    Hayden Alexander Crites
    Luke James Daigle
    Jackson Dean Dandurand
    Jeremiah Isaac Deskins
    Margaret "Maggie" Kathleen Dowtin
    Ethan Michael Driller
    Clodagh Elizabeth Dunne Byrne
    Cooper Alexander Gerhardt
    Lily Helena Golding
    Elijah Brian Harkins
    Maria Guadalupe Hedgepeth
    Lilah Rae Henry
    Harry James Hicks
    Gage Clifford Dewayne Hunt
    Toni Ann Jacob
    Matthew Kurtis Jones
    Kyra Maxime Keller
    Wyatt James Koger
    Mason John Linehan
    Jessica Hope Macleod
    Sam Oliver Matthews
    Kayden Charles May
    Logan Charles Minch
    Makayla Eve Nava*
    Jabriel Christopher Nicholson II
    Jack A Parris
    Baby Frederick Payne
    Mikaihel Enrique Perez
    Josephine Carmella Quick
    Kayla Nicole Rubio
    Addison Elizabeth Ryan
    Julia Sophie Salazar
    Sneha Anne Senthil
    Brooke Robin Sroka
    Marco Telesca
    Evan Andrew Tessmer
    Gavin Robert Vanbrocklin
    Judy K. Wells
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

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