Like I said I missed the begining and had class last night and work this morning. My parents don't have DVR. Is my house ready to be moved in to yet?!? I miss my DVR!!
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Like I said I missed the begining and had class last night and work this morning. My parents don't have DVR. Is my house ready to be moved in to yet?!? I miss my DVR!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Well, not that we'd wish CDH on anyone but there is a celebrity in the U.S. who had a CDH baby and I've been talking with her manager this week to see if she wants to be our CHERUBS spokesperson.I shant post a name yet because well, we have issues with well, you know who, and we don't want this sabotaged (and if you know who - either the celebrity or the person who would try to sabotage it - please don't post either). I'll let you all know who once it's official! Say some prayers!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
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That is great news that there is a celebrity who has had a baby with CDH especially if he/she would be a spokesperson NOT that im glad that this person has had a CDH baby though just that it would help with awareness.
Hopefully he/she will help us with awareness
[url=http://counters.families.com][img]http://tac.families.com/cb/205944.png[/img][/url] [URL=http://img529.imageshack.us/my.php?image=cdhawarenessribbonjacobpf0.jpg][img]http://img529.imageshack.us/img529/1527/cdhawarenessribbonjacobpf0.th.jpg[/img][/URL] [url]http://jacob-ogilvie.memory-of.com/[/url]
Dawn-that would be great to have a celebrity as a CHERUBS spokesperson.
Is this celebrity a member of CHERUBS now? I am sorry that he/she has had to deal with CDH--but this would be fantastic to have him/her help to spread CDH Awareness.
Now I am wondering what this celebrity situation is---can you share a little with us?!?!?
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Ashley- I do have one copy of the Infants fight for life.
I would love to send you a copy. Do you have a VCR? or should I try and get it taped to a DVD?
If anyone else would like a copy---please let me know and I will get a count up and have some made and send them out.
I will go to the Video store next week sometime.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Ashley, it's Discovery Health.
Dawn, you do such a wonderful job! I am glad to see you have found a celebrity spokesperson! Also, sadden we have to share CDH with them. I will be keeping my fingers crossed
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
WHO IS THIS CELEBRITY?????????
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
I found a British celebrity.... I don't think it's the one Dawn is talking about ....
Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/
You found one too, to be the spokesperson?!? This is just great!! I am afraid to right to the media about Shannon. Last October, I wrote every newspaper and news channel in my area twice, and they never responded. I am not sure how many people really want to here stories with not so happy endings.
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Oh no... not to be the spokesperson... I just did a google search and found a British soap opera actress who lost her CDH baby at a year old... so sad... I don't know if she even knows about CHERUBS....
Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/
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