I'm Rachel and am in Minnesota. 20 weeks pregnant with a boy due July 16, 2015. Anyone from MN still in here to talk about their experiences?
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I'm Rachel and am in Minnesota. 20 weeks pregnant with a boy due July 16, 2015. Anyone from MN still in here to talk about their experiences?
We currently do not have a rep. in MN Rachel, Brenda Johnson stepped down a year or so ago. She would be more than happy to talk with you if you would like me to match you two. Are you taking your care out of state or using a hospital within MN?
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
That would be great! Staying in mn for my care.
Hi Rachel. I am Donna, Mom to a LCDH . We are in Sioux Falls, SD currently, but delivered at Minneapolis Childrens. I am definitely available to chat if you would like.
New to the Cherubs website. We were diagnosed at Avera maternal fetal medicine. They have suggested doctoring in Sioux Falls S.D. or in the Cities in Minnesota. We are meeting with someone from Twin Cities soon. Just looking for any other Minnesota families diagnosed with CDH.
Hi Ashlei, I hope you were able to connect with some Minnesota families on FB. Its unfortunate that our forums don't get used that frequently anymore but members find FB easier. I hope you found a great hospital with a team you feel comfortable with. Thinking of you and your baby.
Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
Please make sure to post in our private support group on FB. If you need an invite sent to this group, please let me know. The groups are marked secret, so they will not show up in a search, this was done for our member's privacy.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Hi Melissa,
I am looking at this post and I see it is an old one. Are you still the state of MN rep? I was looking to do some volunteering and have not heard back from an email I sent earlier this spring to offer my services.
I have a son who is a survivor.....age 30.....he is a teacher and is married. I am semi-retired, I could use some of my time to help other families. I am a Child Psychologist .....and could add expertise; if needed.
Thanks for your help!!
Mary Mitchell Lundeen
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