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Thread: Makayla's onesie

  1. #11
    that is so cool, i love it.
    Makayla is gorgeous
    http://photos-h.ak.fbcdn.net/hphotos..._2290456_n.jpg Left side CDH- ECMO 9 days- Had his surgery Thursday 01-03-08!! trach w/ Vent.. Weaning off of vent 4 hours a day... @ 21 months started potty traing... mikcey button since 9-2209 As of 2-2009 Dakota's Tracheomalacia and Bronchomalacia ( floppy airs ways) Is now gone. his airways are a normal size!! He's my heart and my soul!!!! I am very blessed.... Dakota's Mom.. ( Beverly) www.dakota-cody.com Movie's about Dakota's fight to live: http://www.dakota-cody.com/videos_of_cody.htm http://dakota-cody.com/cody/CodysFoundationbutton.gif www.codysfoundation.com[img

  2. #12
    Awesome job on the onsie. Makayla is gorgeous!
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg

  3. #13
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    Thanks on the compliments to my little princess I LOVE the onesies, I am soooo glad I got them. They have bibs and crawlers and all sorts of things you can personalize...that could get dangerous! I should give Nate my credit card-lol

    Lynne- I agree, she is starting to look more like Nate. Gabe looked a lot like Nate, everyday I am seeing more Gabe in Makayla and it makes me so happy. I thought I wouldn't like seeing Gabe in her, but it makes me smile!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  4. #14
    The onesie is great!!
    She is just the sweetest little baby!! Even more beautiful in person!!
    Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/

  5. #15
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    Oh-thanks Cristin Graham and Dottie were both so adorable! I am so glad we got the chance to meet up yesterday!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  6. #16
    Corin, I think it is great to see Gabe in Makayla as well. After all, he is her big brother! I mentioned in another thread that I see my deceased dad in Baer every time he smiles. He would have loved to see himself in Baer. Someday's I get so mad at him for taking his own life and missing all of this. But on a more positive note, we are going to see our local Red Sox farm team, the Greenville Drive tomorrow and everyone will be wearing our Red Sox tees except Baer. I went to Babies r us today to get one because they had them in their flyer, but they did not have them in the store. So anyway, I am going to look to see if they still have the Little Green Monster onesies at the field this year and get Baer one. If they do have them, what size does Makayla wear?
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  7. #17
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    Thanks Lynne! She is in 3-6 months right now, but not for much longer, so if they have 6-9 months it would probably last longer into the baseball season

    I am so sorry about your father, its nice to see him in Baer!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  8. #18
    I REALLY hope they have them this season. Baer is just now getting into 6 months and only because of his height. He is still a little thing! I am so excited about the game. It is the next best thing to seeing the Sox I guess. One of our teams coaches went back to play for you guys this season. Bummer. Have you taken Makayla to any games? Do you plan to? My hubby's employer has a suite there so atleast I can take him indoors and still watch them game. Gotta come out for that 7th inning stretch and sing "Sweet Caroline". Have you seen Fever Pitch?
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  9. #19
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    well I hope Baer likes big girls cause she is not a little thing

    We want to take her up to a game this year but it has gotten so expensive, and difficult to get tickets. I'm sure we will go see the Pawtucket Red Sox a few times!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  10. #20
    Hopefully he will be like his big brother. He says "big girls need love too"! Baer may be considered small weight for his age, but he sure does have a double chin and rolls on his legs. I bet it is hard to get tickets. Since winning the series. Are you guys just as big of Patriots fans as you are Sox fans?
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

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