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Thread: Need Stories and Photographs for our Newsletter and Book!

  1. 04-27-2008, 03:25 PM #1
    Dawn Torrence Ireland
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    Need Stories and Photographs for our Newsletter and Book!

    Hi Everyone,

    We're ready to start on our next newsletter and we need more stories of families who have dealt with Congenital Diaphragmatic Hernia (survivors and those cherubs in heaven). Stories (and photos) will posted on our web site, in our Silver Lining newsletter and in the next edition of our book "Stories of Cherubs" due out this winter.

    If you would like to include your cherub's story please e-mail it to membership@cherubs-cdh.org.

    You can read over 300 stories of families who have been affected by CDH on our web site at http://www.cdhsupport.org/members/index.php?c=44

    Dawn
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

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  2. 04-27-2008, 03:42 PM #2
    DanielleGolding
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    When is the deadline Dawn?
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
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  3. 04-27-2008, 06:04 PM #3
    Dawn Torrence Ireland
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    For this newsletter May 5th. For the book October 31st.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

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  4. 04-27-2008, 06:33 PM #4
    Corin Nava
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    Dawn-did I ever send in Gabe's story? I can't remember.
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
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  5. 04-27-2008, 07:11 PM #5
    Dawn Torrence Ireland
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    Hmmm... I can't remember off the top of my head, Corin (long day)! If you did it would be either in the stories section or in the last 2 newsletters. We've published everything we've received up to the last newsletter I think.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

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  6. 04-27-2008, 07:40 PM #6
    StephanieOlivarez
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    I have the Rat Patrol's ride for CHERUBS story for the newsletter. Can you use that?
    I have submitted Shelby's story--so you have it or should I send an updated one?
    Another newsletter already---Shane and I LOVE the newsletter Dawn.
    You so such a great job!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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  7. 04-27-2008, 07:51 PM #7
    Dawn Torrence Ireland
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    Yes, please do send me those, Stephanie!!! Thank you!!!

    And everyone else who is planning events or just had them or any other exciting news to add... please send that too!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

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  8. 04-27-2008, 08:09 PM #8
    StephanieOlivarez
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    Are you going to use the Dad's side to CDH in this newsletter?
    I will get you the story on the Ride for CHERUBS and some pictures.
    Should I send in the story about Shelby? With all the updates?
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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  9. 04-27-2008, 08:13 PM #9
    Dawn Torrence Ireland
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    Yes, Shane's article will be in this newsletter.

    Yes, please send me Shelby's updated story too.

    Thank you!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  10. 04-28-2008, 07:13 PM #10
    BeverlyCawvey
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    sent dakota's story =)
    http://photos-h.ak.fbcdn.net/hphotos..._2290456_n.jpg Left side CDH- ECMO 9 days- Had his surgery Thursday 01-03-08!! trach w/ Vent.. Weaning off of vent 4 hours a day... @ 21 months started potty traing... mikcey button since 9-2209 As of 2-2009 Dakota's Tracheomalacia and Bronchomalacia ( floppy airs ways) Is now gone. his airways are a normal size!! He's my heart and my soul!!!! I am very blessed.... Dakota's Mom.. ( Beverly) www.dakota-cody.com Movie's about Dakota's fight to live: http://www.dakota-cody.com/videos_of_cody.htm http://dakota-cody.com/cody/CodysFoundationbutton.gif www.codysfoundation.com[img
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