Stay Connected

Page 1 of 3 1 2 3 LastLast
Results 1 to 10 of 24

Thread: ECMO hospital list ????

  1. #1

    ECMO hospital list ????

    Do we have a list of hospital's that provide ECMO ?
    I know of a few, but was just wondering, thought that information may be useful to us. If we dont have one, do you think we could somehow compose one?

  2. #2
    No, we don't have one, but I'm sure there's a list somewhere. I'll see what we can find - surely one of our Medical Advisors has a list.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #3
    Thank you It's just on my mind for reason. .. . . ..

  4. #4
    I know that University of Michigan and Spectrum/DeVos Children's hospitals have ECMO.
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  5. #5
    Senior Member karahess's Avatar
    Join Date
    Sep 2007
    Posts
    1,961
    Blog Entries
    22
    Akron Children's Hospital also has ECMO.
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

  6. #6
    Oh, great ..
    I know the University of Viriginia does, and as far as I can tell, that's the only one in VA .....

  7. #7
    There was another CDH baby at UVA while cole was is NICU, it was on ECMO ... i often think about that family , wonder about that baby.
    Didnt get to talk to the family, the mother wasnt able to be there much for some reason, so our paths never really crossed

  8. #8
    I know Vanderbilt Childrens Hospital has ECMO
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg

  9. #9
    Children's Hospital Boston
    Massachusetts General Hospital Floating Hospital for Children
    Children's Hospital of Pennsylvania
    Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/

  10. #10
    Sad to say some Hospital's have EMCO But, Not the ECMO Specialists.
    hope this helps =)

    Chicago Children's memorial Hospital

    http://www.childrensmemorial.org/
    Extracorporeal membrane oxygenation (ECMO)
    Extracorporeal Life Support (also known as extracorporeal membrane oxygenation, ECMO) is cardiopulmonary bypass pumping done for prolonged periods of time at a child's bedside. Cardiopulmonary bypass was originally developed to allow surgery on the pediatric heart during "open heart surgery." However, we have been able to adapt the technology to support children who suffer pulmonary failure from a large variety of causes.

    Children with overwhelming pneumonias, those born with severe congenital anomalies such as diaphragmatic hernia with pulmonary hypoplasia, or children who have heart failure following cardiac surgery may be candidates for ECMO support. In all of these children, ECMO circulates a child's blood so that oxygen can be supplied to the body and gaseous wastes removed, allowing time for healing for a child's damaged lungs.

    These highly complex procedures are done in the Neonatal Intensive Care Unit or the Pediatric Intensive Care Unit at Children's Memorial. Staff members in the Division of Pediatric General Surgery, as well as a host of other supporting services, provide consultation. Full parental consent is sought prior to the initiation of the ECMO procedure, which generally lasts from several days to as long as three to four weeks.

    Pediatric surgeons are available to families to keep them fully informed of a child's progress when undergoing this innovative but technologically demanding support. Ancillary care services and surgery are provided as necessary, and pediatric surgery maintains long-term follow-up services for all of the children who have undergone ECMO.


    ++++++++++++++++++++++++++++
    University of Chicago Medical Center.
    Donald Liu, MD, PhD
    Associate Professor of Surgery and Pediatrics, Surgeon-in-Chief for the University of Chicago Comer Children's Hospital
    www.uchospitals.edu/physicians/donald-liu.html
    http://photos-h.ak.fbcdn.net/hphotos..._2290456_n.jpg Left side CDH- ECMO 9 days- Had his surgery Thursday 01-03-08!! trach w/ Vent.. Weaning off of vent 4 hours a day... @ 21 months started potty traing... mikcey button since 9-2209 As of 2-2009 Dakota's Tracheomalacia and Bronchomalacia ( floppy airs ways) Is now gone. his airways are a normal size!! He's my heart and my soul!!!! I am very blessed.... Dakota's Mom.. ( Beverly) www.dakota-cody.com Movie's about Dakota's fight to live: http://www.dakota-cody.com/videos_of_cody.htm http://dakota-cody.com/cody/CodysFoundationbutton.gif www.codysfoundation.com[img

Similar Threads

  1. Wish List
    By klunick in forum More CDH Support and Info
    Replies: 36
    Last Post: 12-14-2010, 11:18 AM
  2. Donations List
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 12-09-2008, 09:06 PM
  3. Not in the list
    By FernandaArce in forum More CDH Support and Info
    Replies: 9
    Last Post: 05-30-2008, 06:56 PM
  4. Parent Reference Guide - Hospital Check List
    By Dawn Torrence Ireland in forum CHERUBS Member Input
    Replies: 9
    Last Post: 11-05-2007, 01:29 PM
  5. Hospital Check List
    By admin in forum Support for Parents Expecting Cherubs
    Replies: 0
    Last Post: 08-25-2007, 06:18 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •