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Thread: what to do?

  1. #11
    Kerri-
    YOU have to do what your heart tells you.
    I too think you going to see a counselor is a great idea.
    You may find some peace and then you will know how to deal with all you are going through.
    I wish I could take away the pain and make things right.
    Please know you are not in this alone. We are here for you every step of the way. Come to us whenever you need to and we will offer you love and support and help you through.
    Sending BIG hugs and positive thoughts.

    Kayla--knows her Mommy loves her and you are doing SUCH A GREAT JOB!!! When you smile at her--she knows you will go to no end to protect her and take care of her and to love her.
    You show this everyday to Kayla.


    Kimberly--Thinking of you at this time. Sending positive thoughts.
    Know that we are here for you also.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  2. #12
    Guest
    thank you all for your support. it took me so long to answer due to Kayla being in the hospital again since memorial day. we are expected to go back to the hospital for surgery in about 2 weeks for a G tube placement. i know its so tough marriage. It even harder when you have a sick baby. My husband and i did alot of talking this past week being stuck in the hospital. he didnt even relize how misreable he was making me. He said the same thing that he just gets so stress out because he is afraid for something to happen to Kayla. I know he adores her but sometimes he gets me so mad. i know he loves us both dearly but sometimes love isnt everything. you really got to act on your love and not think just saying i love you is enough cause its not anymore.

  3. #13
    I am glad that you were able to talk things over. I hope that Kayla is doing well. Keeping you in our thoughts and prayers.
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  4. #14
    I am so sorry to hear that Kayla was in the hospital.
    Is she doing better today?
    I am happy to hear that you and your husband talked and I wish you both nothing but the best.
    When is Kayla's g-tube surgery?
    I am keeping you and your family in my thoughts and prayers.
    Please let us know how Kayla is and know that we are here for you.
    Will be thinking of you when Kayla has her g-tube surgery.
    BIG HUGS!!!!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  5. #15
    Kerri,
    I'm sorry Kayla has been back to hospital! How's is she going now?
    I'm glad you and your hubby had a chance to talk! It's a start..
    I will be thinking of you and Kayla when she has her g-tube surgery
    My thoughts are prayers are with you and Kayla..
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  6. #16
    Senior Member
    Join Date
    Dec 2007
    Posts
    599
    I'm sorry Kayla needs another surgery, but to be honest, I love the g-tube. It makes life SO much easier.

    I'm very glad you and your husband had a good talk, communication is key especially when you're juggling a marriage and a sick child. Hopefully you three will come out of all of this stronger.

    Best of luck with the surgery, keep us posted!
    ~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!

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