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Thread: Need your help

  1. #11
    Thanks Donna.
    I am going to be talking to Dawn and I will let you know what you can do to help.
    YOUR AWESOME!!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  2. #12
    Sounds good to me.
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg

  3. #13
    Please let me know what I can do to help
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  4. #14
    Donna, Lynne, Tania and Kim.
    You all now have access to the private conference committee forum.
    The thread is called "What you should be doing."
    I made a list of phone calls and please let me know if what I gave you is ok.

    Tania and Kim---since you are out of the states--I am waiting on Dawn to tell me what e-mails you can do.

    THANKS!!!!THANKS!!!!

    Any questions-please do not hesitate to ask.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  5. #15
    Thanks Steph, i just seen that thread.
    [url=http://counters.families.com][img]http://tac.families.com/cb/205944.png[/img][/url] [URL=http://img529.imageshack.us/my.php?image=cdhawarenessribbonjacobpf0.jpg][img]http://img529.imageshack.us/img529/1527/cdhawarenessribbonjacobpf0.th.jpg[/img][/URL] [url]http://jacob-ogilvie.memory-of.com/[/url]

  6. #16
    Thanks steph!! I was wondering when that became avaliable to me Cant wait to help out!!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage

  7. #17
    I can help with phone calls, I have unlimited long distance. Let me know.
    Aunt Nancy, ps home from hospital.

  8. #18
    That is great news that Aunt Nancy is home from the hospital.
    I am SO happy to hear this.


    Here are the sites for the events:
    www.cherubsconference.org
    www.cherubsangelball.org
    www.cherubsgolfouting.org

    Take a look at those if you can and what we are looking for is Sponsors for the Angel Ball and the Golf outing.

    Please let me know if I can answer any questions.

    We are also looking for e-mail addresses to send out to try and get sponsors.
    If this is something you are interested in helping with - please let me know.

    THANKS for volunteering to help.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

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