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Thread: Need Quotes for the Media... How has CHERUBS helped you?

  1. #21
    Five and a half years ago, during my second pregnancy, my child was
    diagnosed with a Congenital Diaphragmatic Hernia (CDH). All I was told by my OB was that there was a hole in her diaphragm and that she would need surgery. I went home and searched congenital diaphragmatic hernia and I found CHERUBS. Almost everything I learned about CDH was due to CHERUBS. Through their website and their information packet
    I recieved in the mail. This information gave me guidance as to what to ask the doctors at and what I need to know about CDH.
    There also is a need for research. The fact that the medical community does not know what causes CDH shows there is a definite need for more research.
    Kim Richards Mom to Olivia Raine 08/31/02-09/19/02 LCDH- Ecmo 19 days Mom to Alyssa 3/30/00 & Carsen 02/19/04

  2. #22
    CHERUBS is my new family, is the place I can go to cry or share or ask for prayers and there is always someone listening. CHERUBS is a place full of love, support and understanding. In CHERUBS I know I'm not alone and that my friends (because I have found so many wonderful friends) will always care for me and my family.
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)

  3. #23
    When my son was diagnosed with CDH,during my pregnancy, I thought it was something simple that could be fixed with surgery once he was born. When he died I was so lost and alone, nobody really understood what CDH was even after I explained it over and over to them. Then I found CHERUBS and immediately I felt at home, everyone is there for me whenever I need them and most importantly I know I am not alone on my own journey of CDH, which makes all the difference!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage

  4. #24
    I thought when Colton was first diagnosed it was a one time thing. He's fixed and we were sent on our way. I went to our follow up thinking this is a waste of money. (not that I wouldn't of gone). But then the Dr, came in and said he had bad news. I was so confussed. I immediatly went home a started doing research. And I found my new friends and now I have a better understanding of what is happening. Not all the answers I was looking for. But I do understand it's not my fault. and Thank you for that.
    Lots of Love- Carrie Mom to Colton Michael- RCDH-Surgery at 5 days for a repair and at 6 months to add a patch.

  5. #25
    Lynne,

    Brilliant post......... clap, clap, clap

    Pen - love the new avator....
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  6. #26
    Kimberly R - that photo is so gorgeous! I really love it!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg

  7. #27
    thanks shaz that was at the lake wednesday cole is a swimming freak ! loves it

  8. #28
    And yes, Lynne, that was a great post. thanks for including us too.
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)

  9. #29
    I am so glad that you all did not mind me including you in it. I wish I could have included everyone. I hope everyone check's it out especially those who were menitoned and let's me know what they think and if they approve. I love you guys so much!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  10. #30
    Lynne-your post was WONDERFUL!!!!
    With all of us feeling SO strong about CHERUBS and ALL of us spreading CDH Awareness--we can do nothing but get the Awareness out there and with Awareness--means MORE Research.
    If we all bond together to keep spreading CDH Awareness--it will get into the public eye and we will stand strong for all we stand for.

    Penny-love the new avatar.
    Kimberly--I love your new avatar also!!!


    Together we can accomplish GREAT things!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

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