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Thread: Need Quotes for the Media... How has CHERUBS helped you?

  1. 06-17-2008, 09:55 AM #41
    LynneB
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    Penny I love ya girl! I can't to meet you and Cole!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  2. 06-17-2008, 12:52 PM #42
    sarah.deskins
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    Very good Lynne!!
    Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png
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  3. 06-17-2008, 02:15 PM #43
    PennyCampsey
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    I know ... cant wait to squeeze baer .. warn him LOL
    can wait to hug you too !!!!!!!!!!!!!
    we will all be so funny ,,, the hubbys will be like "oh my gosh what a bunch of crazy women" LOL
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  4. 06-17-2008, 03:02 PM #44
    LynneB
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    Mine is used to me being crazy! Baer is very cuddley! He loves to be held with his head on your shoulder and be snuggled!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  5. 06-17-2008, 03:14 PM #45
    PennyCampsey
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    awwww he's a little snuggle nugget !
    cole is shy very shy at first but once he opens up .... oh boy
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  6. 06-17-2008, 03:21 PM #46
    LynneB
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    I just want to pinch those cheeks! we call Baer a cuddle bum cause he will bum a cuddle off of anybody!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  7. 06-17-2008, 03:31 PM #47
    PennyCampsey
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    that's cute!!
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  8. 06-18-2008, 03:40 PM #48
    FernandaArce
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    Same here, Dawn, do u need a pic of Juanpa? if so, where should I send it?
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  9. 06-18-2008, 04:05 PM #49
    Dawn Torrence Ireland
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    Please send your pictures to events@cherubs-cdh.org and make sure to tell me it's for your quote... would be super helpful if you could copy your quotes and cherubs' names and date(s) as well in the e-mail so I don't have to go searching for them.

    Thank you!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  10. 06-18-2008, 08:47 PM #50
    PennyCampsey
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    Thanks dawn, will send it now
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