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Thread: Ode to CHERUBS Members

  1. #1

    Ode to CHERUBS Members

    Dear Everyone,

    I've been reading all your responses to those members who have just lost their cherubs - and I know each of you are completely sincere in your condolences and how your heart hurts for these parents and grandparents. I can picture those of you who have your cherubs hugging them longer tonight as you kiss them off to sleep. I can picture those of you grieving for your cherubs wanting to help make this easier somehow for them. And I know all of you are wishing you could take this pain from them and give their cherubs back to them. Even those you haven't talked to or know that well - your hearts are open to them.

    I've been reading your responses to those cherubs having surgery or who are sick - and I know you are sincere in your prayers and cheering them on to get better and wanting to hug their parents through it all.

    I watched you all come to the aid of a mom at her wit's end, letting her know she's not alone. Sharing your stories and yourselves and trying to give her courage to continue on.

    I read your welcomes to new members - and I know you do welcome them. All of them. Everyone here is family the minute they introduce themselves. Whether they post often or rarely at all, I know you are all there for them just as you would be with friends here you've known for years. There are no cliques, no cattiness, no gossip, no games. Every one is equally wanted and loved and supported here. Just speak up and we are here.

    I see friendships form here every day. I see such loyalty and goodness in all your hearts. I see how positive you all are to each other - even though this is such a devastating birth defect that has bought us all together.

    I don't say this nearly enough, but I am so very, very, very proud of our membership. You are the most amazing, wonderful, kind and supportive people and I am so proud to call you friends.

    (((((((((((((((((((Big ole group hug)))))))))))))))))))))))

    Thank you for all you do for each other every day. You all make our cherubs proud!

    Love,
    Dawn
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Aww Dawn. You are so sweet. We thank you! Without all of your hard work we would not have this wonderful safe haven to share our thoughts and feelings with one another. Thank you for making a difference in all of our lives!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  3. #3
    Dawn, Because of you - we are all a family...I thankyou for founding CHERUBS! You inspire me with you strength and your passion.

    Guys - I'm so very proud to call you all my mates!! We love, cry and laugh together with one common goal - CDH.

    You all ROCK!!!!

    xxxx
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  4. #4
    Dawn, we follow the best example set by YOU. Who else is as kind and caring as you? Who else has worked night and day to give us this "home" as you have? Who else knows better the struggles that we all face EVERYDAY? We else knows best the devastating fear that is in our hearts? Dawn YOU have gave us the "example" in sharing your life and Shane's with us. You have shared your struggles, your fears with us and lead us through.......you have showed us how to be caring and positive even when we want to be "ugly" because of the unfairness of CDH. We have learned from the best......and we are so thankful that we have!
    Love ya lots!

  5. #5
    Dawn, without you founding Cherubs we wouldn't be able to give support to others when they need it most.
    I know personally that helping others also helps me with my grief, and each baby that passes away is like losing Jacob again but i am glad that i can help give support. I just wish i had of found Cherubs earlier.
    Thank you
    [url=http://counters.families.com][img]http://tac.families.com/cb/205944.png[/img][/url] [URL=http://img529.imageshack.us/my.php?image=cdhawarenessribbonjacobpf0.jpg][img]http://img529.imageshack.us/img529/1527/cdhawarenessribbonjacobpf0.th.jpg[/img][/URL] [url]http://jacob-ogilvie.memory-of.com/[/url]

  6. #6
    Dawn, I want to thank you so much for founding CHERUBS! You are an amazing woman and I admire your strength and courage to help others who have been affected by CDH and sharing Shane's life with us. CHERUBS was a resource, a friend, that I constantly used after my son was born. I wish I wouldn't have been so afraid to open up and reach out for all the support that is here. Now, that I am able to help others in situations like mine, I feel good about that. Thank you Dawn for all you do, we appreciate it!!

    Big Hugs,
    Tracy
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  7. #7
    Awwww, ya'll are so sweet... but I've only done the paperwork and programming and behind the scenes stuff. Maybe that's the skeleton of CHERUBS, but you all are the flesh and blood that make it what it is. CHERUBS is all of us, all of YOU!!! I've been in a lot of other groups over the years and I've never seen one that has members as supportive and giving. Most groups have fights, cattiness, gossip, etc. Not here, not a drop here. Why? Because you all are so amazing and have created such a great place here.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #8
    Thanks Dawn - you are the BEST!!!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg

  9. #9
    Dawn, that was so very nice of you to post that for us!
    If you had not started this site, all of us would have never ever met , i cannot imagine not having the CHERUB family to count on , I would be so lonely! thank YOU for getting this going and bringing families all over the world together

  10. #10
    Dawn, you made me cry!. Thanks to YOU! When I have a bad day I think of you and your strenght and courage and I go on. When I am at my wits end I come here and vent and I've found more support than I've ever imagine. Thanks for founding this amazing family and thanks for sharing your life with us, for letting us be a part of you.
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)

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