There doing construction of all things......
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There doing construction of all things......
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
as long as its not something Y'all (penny slang) can catch!
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
HAAAAAAAA SHAZ! LOL!
well girl, i'll get there as soon as I can to entertain the girls !
LOL
what is liam holding there SHAZ
Pen... smartie choc block... do you have smarties?? They are like m&m's
make sure the girls (Lynne esp) has a cosmo for me
xxx
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
I'm so jealous of y'all. I wish I was going to be there. Next time, count me in!!!!!!!!!!
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!bowel- liver- small intestines up with gortex repair had her repair while on ECMO on ECMO for 44 days (her entire life) Nitrate for 30- vent for 34 days- oscilator for 10 days Our Blog: www.thecreekbaums.blogspot.com
Leigh, we can't wait to see you next year! Shaz our smarties are fruity. We have sixlets that are kind of like m&m's. I am almost cosmo bound,in about 3 hours! I wish I could mix some up for the road! I do have some frozen mix in the freezer! I would hate to get arrested for open container and have to call Dawn for bail money!
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
Lynne-wait till you get here and we can have a drink together-lol. No jail time on the trip!
The hotel is nice, does suck not being able to use the pool!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
Corin, I am all for some mini bottles!
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
Hotel was horrible, I have lots of complaints.Definitely writing complaint letters! The pool, the staff, the bumpy carpets, the weird smell in the conference hall, etc. Very disappointed.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
The pool ended up opening.
So that was a bit of a help.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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