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Thread: CDH Logo Buttons - positive feedback

  1. 06-30-2008, 08:27 PM #1
    JaanaRosenlund
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    CDH Logo Buttons - positive feedback

    Hi all

    Not sure where I should post this....wanted to share

    I recently got some CDH Logo buttons, I had originally planned to just wear them at home for Gabriel's birthday. I ended up giving them to friends to wear to work etc(and their co-workers as well) as well as other contacts to wear this week (especially) for Gabriel's birthday.

    A lot of people wanted to pay for the button - I directed them to make a donation instead. Yay!

    Comment from a co-worker:

    I will make a donation directly to the foundation instead. I have had a
    little look at the website and have found out some very amazing statistics
    and information on CDH.

    The website is fantastic and I have had a lot of people with similar comments. I was so happy with the feedback that I just had to share it with you all...........
    Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
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  2. 06-30-2008, 08:47 PM #2
    AmyMiles
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    that is great! Thanks for sharing that with us!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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  3. 06-30-2008, 09:48 PM #3
    KimberlySwitzer
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    That is wonderful news
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
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  4. 06-30-2008, 09:53 PM #4
    Damon andSharonknott
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    Way to go Jaana!!!!

    Not long now for the big number 1.....
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  5. 06-30-2008, 11:48 PM #5
    MaryanneReid
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    That's fantastic Jaana!
    Maryanne (mum to Rebecca born 11/11/02 with LCDH)
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  6. 07-01-2008, 05:23 AM #6
    DanielleGolding
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    That's really cool Jaana!!! Not long now til the big no. 1 - it's so exciting but sad - they are just growing up way too fast!!!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
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