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My family and I are wanting to do a walk for CDH in our town sometime in the fall. No one has a clue as to where you begin to set something like this up. I'm sure there are people here who can help, so any advice is appreciated. We would alos love it if you could come as well. It will be in the Owosso, MI area.
Thanks!
Mother to Jayden. Diagnosed at 18 weeks with Right CDH- hypoplastic right heart- heterotaxy syndrome- polyspleenia- dextrocardia- situs inversus. Vent 38 days- Nitric Oxide 10 days- CDH repair at 4 days- Open heart surgery at 3 1/2 weeks- came home after 47 days at U of M. He came home on a NG tube- which he had for 6 1/2 months. Visit www.carepages.com CarePage name MJaydenR to read more about Jayden and to see pictures!
Hmm I am not sure, but I know my aunt started a cancer walk in our home town in memory of my Grandpa. I will ask her. I would love to come to it!
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
I haven't ever done a walk, but I know several here have and hopefully they will chime in with some advice.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I don't have any advice.... but just wanted to say it sounds like a great idea! Keep us updated!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
I love the idea!! I haven't done it but I have been thinking about it so let me know how it goes!
Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
I would start with some flyers, and of course get your family involved.
A sunday would be a good day to do it on, and plan in advance, its amazing how time consuming charity work can be!
Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png
good luck, i have never done one either
Hi Katie, how is planning going? Feel free to download our CDH brochures or any other literature you might need!
It is VERY time consuming planning an event so do give yourself plenty of time to plan!
I'm thinking maybe at our future conferences we should try to do walks and balloon releases so I'm really interested in how you're doing this!!! Please keep us updated and whatever help we can give, we'll do it!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Hi Katie! I am in Flint (near Flushing) and would love to know how far you have gotten on this?! I will help in any way that I can also!! Have you found a spot to hold the event? How exciting!
I can not believe that I missed this post!! Katie and I are almost neighbors! LOL
Barb
We're doing the walk from Owosso to Corunna. There is a path about 2 or 3 miloes long that runs along the Shiawassee River that woul dbe perfect. We have the YMCA interested in sponsoring the event, they just wanted some information on CHERUBS. We would like to have shirts made for all the participants, and it would be great to find a place to make them cheap (if anyone knows of someone let me know). I would like the proceeds to go to CHERUBS, so Dawn, I need to know how to have that set up. DO we just send the money after the event, or do you need to do anything in advance?
Mother to Jayden. Diagnosed at 18 weeks with Right CDH- hypoplastic right heart- heterotaxy syndrome- polyspleenia- dextrocardia- situs inversus. Vent 38 days- Nitric Oxide 10 days- CDH repair at 4 days- Open heart surgery at 3 1/2 weeks- came home after 47 days at U of M. He came home on a NG tube- which he had for 6 1/2 months. Visit www.carepages.com CarePage name MJaydenR to read more about Jayden and to see pictures!
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