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Thread: Henry's story in our local newspaper

  1. #1

    Henry's story in our local newspaper

    Our local newspaper published 2 articles about our son, Henry, in early June. The first one is about Henry, his condition, and his homecoming after 8 weeks in the hospital. The second is about a benefit that was held for our family. During the benefit, we raised awareness of CDH in our community. It was wonderful, and we got a ton of support!

    You can read the articles by going to these links:

    http://www.middletownjournal.com/new...bhenry_a1.html

    http://www.middletownjournal.com/n/c...ry_inside.html


    Check the articles out...
    http://i289.photobucket.com/albums/l...glishsmall.jpg -Katie English Mom of Henry: LCDH diagnosed at 18 weeks gestation- born March 25- 2008. ECMO for 2 weeks- CDH repair at 3 1/2 weeks- home at 8 weeks! Still on O2 at night. Also Mom to Emma (12)- Gail (10)- and Claire (7)- (Henry's big sisters and loyal guardians!) www.carepages.com (Look up HenryEnglish)

  2. #2

    Correction

    Correction: Sorry, the first article is about the benefit, the second is more about Henry's homecoming. No biggie... Still worth a look if you have a minute!

    Thanks !!!
    http://i289.photobucket.com/albums/l...glishsmall.jpg -Katie English Mom of Henry: LCDH diagnosed at 18 weeks gestation- born March 25- 2008. ECMO for 2 weeks- CDH repair at 3 1/2 weeks- home at 8 weeks! Still on O2 at night. Also Mom to Emma (12)- Gail (10)- and Claire (7)- (Henry's big sisters and loyal guardians!) www.carepages.com (Look up HenryEnglish)

  3. #3
    That is so great to have Henry's story out there to educate people about CDH! Congratulations! He is so beautiful!
    LCDH diagnosed at birth- surgery repair at 2 days old- vent 9 days- came home after 25 days in the NICU!

  4. #4
    Katie,

    The articles are brilliant!
    Henry is a miracle.
    You are all in my thoughts and prayers
    Shaz xx
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  5. #5
    Katie,
    I love the articles!! Henry truely is a miracle and sharing his story with others is wonderful to spread awareness about CDH. Keep doing so amazingly well Henry - big Hugs from Wyoming!!!
    Tracy
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  6. #6
    Wow Katie I never realized his kidney was up too! He certainly is a little miracle babe. Thanks for sharing the stories. Your community has been amazing!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  7. #7
    THAT IS AWESOME !!!!!!!!!!!

  8. #8

    The article was slightly wrong!

    I have to say, the guy who wrote the articles was a great guy, but he did get that wrong, Amy. Henry's kidney was not up, neither was his spleen, etc. All that was up, as far as I know, was his stomach and small intestine. When I read the article for the first time, I was upset that he got that wrong. I'm guessing that the writer got that from a website, as kind of a generic description of CDH, and the possible organs that can be affected. He wrote it, and published the article, and when I realized the error, it was too late to change it. I know, it makes Henry's plight seem much worse than it was, but, oh well. I guess the main thing here is that a few more people are aware of CDH now. Even if the writer got it a little wrong.
    http://i289.photobucket.com/albums/l...glishsmall.jpg -Katie English Mom of Henry: LCDH diagnosed at 18 weeks gestation- born March 25- 2008. ECMO for 2 weeks- CDH repair at 3 1/2 weeks- home at 8 weeks! Still on O2 at night. Also Mom to Emma (12)- Gail (10)- and Claire (7)- (Henry's big sisters and loyal guardians!) www.carepages.com (Look up HenryEnglish)

  9. #9
    Very true Katie. He still is a very handsome miracle either way! Take care!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  10. #10
    exaclty katrina ...
    at least the article was done and not many know there was an error and in some CDH that does occur; we are so happy for the coverage!

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