I really enjoyed getting to meet and spend time with everyone. I hate I was so tired and on some pain meds or I would have been a little crazier!
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I really enjoyed getting to meet and spend time with everyone. I hate I was so tired and on some pain meds or I would have been a little crazier!
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
Lynne, we know you are as crazy as the rest of usBaer is just too cute for words. It was so much fun meeting everyone and I had such a wonderful weekend. Jeff said last night that he was so glad that he went, he wasn't really into it (the whole 8 hr drive thing) but he said that he had a great time and was surprised at how everyone just clicked. High praise coming from a man!!
I will post pictures later. I am supposed to be cleaning house LOL
Mom to Brandon 7/17/96 LCDH repaired six times- ECMO seven days- nissen and g-tube at three weeks- g-tube removed at five years- slight scoliosis Also Co-Rep for the State of Ohio
Looks like you had a BLAST!!!!! I really wish I was there... BUT... WHEN IS THE NEXT ONE????
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
Oh my! Look at that picture, after 5 bellini's I still wasn't buzzed! What a great time, my legs hurt the next day. We tried to get Kara to dance, but she is good at holding her ground.
Penny is right! I think it is so great how we all clicked, we share a common bond.
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Penny do u know what I heard ALL the way home today?!?! 16 HOURS of "Oh no he didn't!".........geez! and the kids were all still laughing when I dropped Jessica off a little while ago!
I missed not saying goodbye to you! and I so wish that I coulda spent more then 5 mins with Cole! What a doll he is!!
We did have a great time at the Angel Ball and wished that u had been there!
It was so fun meeting everyone! Thanks for the smiles and tears!
Ok now I gotta go unpack.....what a long day!!
Barb
AWWWWWWWWWWWWWWWWWWWWWWW
i had so much fun with yall too !
AunT Nancy . that's so funny, i just met you and cant stop calling you AUNT Nancy ! LOL
we just love you, you are so funny!
BARB ..... tell SHANE .. OH NO HE DIDNT TALK ABOUT ME ALL THE WAY HOME!
I'm gonna call him one day and leave him that on the answering machine so he can play it over and over and over.
BARB .. my friend lives in Hemlock....Midland/Saginaw area.
You guys are all SO GREAT !
i wanna get together this weekend again LOL
forget CDH street, let's create a CDH town !!
BARB .... are you still smelling bacon ?? LOL!
Ugh, just got home and I am soooo tired.
It was incredible how well we all clicked! Nate was saying he couldn't believe how much fun he had. I highly doubt I will be able to get out to San Francisco if it's out there next year.... we might have to plan a get together out here for all those who can't make it out there!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
Oh holy cows Penny!! ROFL Nope......strange thing.....everytime I was away from Jeff that bacon smell disappeared! hehehehe!
Wow! The small small (did I say SMALL?!) town of Hemlock!!! I have friends there also! Actually spent most every weekend in that area growing up and it is only about 30 to 45 mins from me.So when you coming up to Hemlock? January right?!? LOL
CDH Town! How cute! Penny you are hilarious! actually CDH town qould be bigger than Hemlock! LOL
Corin I know that you are so very tired!! I feel ya! I am so glad that u guys got home safely! We are never short on fun when us crazy CDH people get together........but I do think that this week has been top of the list in fun!
Barb ... i did eat a BLT !!!! HAAAAAAAAAAAAAAAAAA
OH ... I have to be blonde !
Hemlock .. hmmmmm in January ? yeah right .
CORIN ! girl, i know you are tired, i emailed you some pictures.
AYLA is such a doll ! She is so very cute and sweet !
I know I cant do SAN FRANCISCO, so i'm in for any get together closer
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