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Danielle, yes I would go! i have to start making my visa arrangements and Juan Pablo's as well... And San Francisco!!!! I've never been there and I've heard it's a beautiful city!... I would SO love to meet you all!
Dawn, I'm so happy everything turned out great!
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
Wow, it sounds like you guys had a BLAST!! I am on board for next year(fingers crossed nothing interfers!) and starting to get my finances in order...
Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
I'm in for San Fran as my brother lives out there! Texas would be cool too. I wish I could've gone this year but hopefully next year! Glad it was a great success!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
I am just hoping to make it to the Aussie one next year so maybe give me baout 5 years or so before i will be able to make it to the US lol
[url=http://counters.families.com][img]http://tac.families.com/cb/205944.png[/img][/url] [URL=http://img529.imageshack.us/my.php?image=cdhawarenessribbonjacobpf0.jpg][img]http://img529.imageshack.us/img529/1527/cdhawarenessribbonjacobpf0.th.jpg[/img][/URL] [url]http://jacob-ogilvie.memory-of.com/[/url]
I am definitely thinking about going next year. San Francisco would be great!
Maryanne (mum to Rebecca born 11/11/02 with LCDH)
The conference and ball were GREAT! It was so awesome to meet everyone. Dawn is just as amazing in person as online. I don't know how you do it all!
After the ball we went to a steakhouse/bar and raised even more awareness while dressed up. We had many people asking why we were dressed up so of course we told them all about CDH!
Many good times. We probably won't be able to make it next year, as we are TTC, but will be there in spirit!
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
San Francisco would be super. The east coast people shouldn't boycott the west coast - you have to share it around!
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
i would love to go to san francisco but i know we wont be able to swing it
Penny, maybe we can carpool.
Ohhhhhh, we should have CDH trains going to SF from all over the country... that would raise a ton of awareness! Get everyone to put signs on their cars along the way. Hmmmmm.....
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
That's a great idea Dawn!
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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