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Thread: OUR LOCAL NEWSPAPER IS DOING AN ARTICLE ON CDH !!!!

  1. 07-31-2008, 09:37 AM #1
    PennyCampsey
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    OUR LOCAL NEWSPAPER IS DOING AN ARTICLE ON CDH !!!!

    OUR LOCAL NEWSPAPER CALLED TODAY, THEY ARE GOING TO DO AN ARTICLE ON CDH .... .AND COLE AND CHERUBS !! YAHOO
    I AM SO EXCITED!
    I AM GOING TOMORROW MORNING AT 9
    ANY SUGGESTIONS AS WHAT TO PLUG ???
    CHERUBS AND THE STATS ...
    I HAD CALLED THEM TO TELL THEM ABOUT OUR CONFERENCE THIS WEEKEND AND THEY CALLED TO DO A STORY
    AS YOU ALL CAN TELL I AM TICKLED PINK!
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  2. 07-31-2008, 09:51 AM #2
    KateC
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    WTG PENNY!!!!

    I can't wait to read the article!!!
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
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  3. 07-31-2008, 10:03 AM #3
    Dawn Torrence Ireland
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    Yeah!!!!! Wonderful!!!!!!!!

    Stats - grab those from our brochure (in the downloads section). Mainly that it's 1 in 2500 babies born will have CDH, 1600 babies a year are born in the US with CDH and 800 babies will not survive. There is no known cause. We need more research done!

    I know you'll do a great job bringing awareness to Danville!!! WTG, Penny!!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  4. 07-31-2008, 10:05 AM #4
    LynneB
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    Penny, I can't wait to hear more about it! YOu go Girl!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  5. 07-31-2008, 10:27 AM #5
    LynneB
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    You inspired me! I just submitted an article to our local paper. Fingers crossed they will publish it or call me for an interview. I had to keep it short, so we'll see.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  6. 07-31-2008, 12:32 PM #6
    PennyCampsey
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    i am so so very excited about this ! our newspaper was so very interested and concerned .. dawn, it is as common as cystic fibrosis or spina bifida ? i know that was thrown out, i just didnt remember which one cdh was compared to
    i am going to print out a brochure, and some general info
    i am cant wait !
    I will submit it when I get it ....
    YAHOOOOOO!
    our newspaper was so interested b/c they had NEVER heard of it before !
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  7. 07-31-2008, 02:20 PM #7
    Donna Easley
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    Heck ya Penny!! Awesome news, I can't wait to see the article.
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
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  8. 07-31-2008, 02:53 PM #8
    Corin Nava
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    Penny- I am "tickled Pink" for you!!!

    You will have to post the article when it's done! That is soooo wonderful!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
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  9. 07-31-2008, 06:55 PM #9
    StephanieOlivarez
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    AWESOME AWESOME PENNY!!!!
    You will ROCK girl!!!!!
    Can't wait to see the article!!!
    Make sure they put a picture of Cole in there!!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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  10. 07-31-2008, 10:30 PM #10
    AmyMiles
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    What great news Penny! You turned on your "charm" for them. They just couldn't say no to your sweet voice! They will just love the pictures of Cole too! Take care and post a copy when its done!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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