MI and OH families help make dinner at Ann Arbor, MI RMD

[AmyMiles]

Just wanted to let you all know that some families that delivered or were cared for at the University of Michigan Motts Children's hospital will be making dinner and spreading CDH awareness!

Tuesday, August 12th, 2008

CDH Familes summer cookout for the Ronald McDonald house of Ann Arbor!

CHERUBS families
English- Henry English LCDH survivor
Valasek- Jayden Valasek RCDH survivor
Miles- Faith Miles LCDH non-survivor

We will be joined by two other families with CDH children!

I know there are a few CDH babes in the hospital right now and we hope to offer those families hope and support.

If I remember my camera I will post pictures!

[PennyCampsey]

How neat !! i think that's great!! Dont forget your camera !

[Corin Nava]

Amy-Thats wonderful! Can't wait to here how it goes!

[Chris and TracyMeats]

How wonderful Amy!! When Chris and I stayed at the Ronald McDonald House in Utah, I appreciated it so much when other organizations took time to prepare a supper for us. Plus, we got to learn so much about other people. What a great way to spread CDH awareness. Post pics if you can!

[Dawn Torrence Ireland]

LOVE this idea, Amy!!!! I stayed at the Durham RMcD for almost 10 months and then the Chapel Hill, NC one on and off for quite a while too. They were such blessing to be just a block or two from the hospital. Some days I couldn't bear to be out of the hospital at all so I slept on the waiting room floor, no way could I have been all the way home. And the families we met.... still friends with some 15 years later! I learned so much from them and never would've gotten through a lot of without them. I can't imagine staying at a hotel and not having that support. I think what you're doing is wonderful!!! RMcD's are a Godsend to CDH families!!!

[LynneB]

Amy, God is working to do great things through you, Steve and Faith. Bless you!

[KateC]

Amy you are awesome, girl!!
Hope you have a blast tonight!

I was never told about the RMcD's. In fact, never really new about what it was until you joined. Our children's hospital is moving and has a new house and all kinds of good stuff I hope to post for new PA parents here soon. Anyways - when the girls get older (for me sooner) I defintely plan on volunteering down there.

[AmyMiles]

Lynne- stop making me tear up!

It was great! It was so good to see everyone again. The little girl that was life flighted into U of M 4 days before Faith passed also had "flubber" and she is a stinking ROCKSTAR! WOw is all I have to say for that little girl and she was so similar to Faith right up to the silo and then that girl took off and they put her organs back in. They were in and out in like 7 weeks!

Anyway, all the babies there are absolutely amazing! It was great to get all these families together as CDH parents.

I am only going to post the photos on my carepage later today as some of them are a part of another group and I don't want to put their child's picture up and anger them. I don't think they would get angry, I just want to respect them. I found all these CDH families through carepages, friends, or during our stay at the RMD house. Absolutely amazing people!

Katie (Jayden's mommy) and Katie (Henry's mommy) both came and their boys are so gorgeous! Absolute miracles.

Six families took part in this and we hope to do it each year and have more families help each year.

[KateC]

That's so great Amy! So glad to hear you had a good time together!

[LynneB]

Did not mean to make to make to cry but He is working through you guys. People say that God has plans for Baer because he made it, but the bible says that we are all called and I believe that. If you look at Shane's life and what an impact that little boy's legacy has made on so many people, that is Gods work and I for one give him all the glory. He is using you, Steve and Faith. "For I know the plans I have for you," declares the LORD,
"plans to prosper you and not to harm you,
plans to give you hope and a future.”
JEREMIAH 29:11 NIV
God will use you if you let him. Faith's life and being has a purpose and you are honoring her by helping others. I bet this is something you would not have been doing a year ago. Sometimes we treat and help others pain so that we can heal our own. You guys are wonderful.