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Thread: MI and OH families help make dinner at Ann Arbor, MI RMD

  1. #21
    Ian is doing very well. He starts preschool next week and I am scared, happy, nervous, you name it and I am feeling it. He is so excited and is all ready--too cute to see him run around with his "Cars" backpack and he keeps asking me, is it school today?

    You must be a busy mom with all 4 kids!! 3 is a handful for me! Part of me always wants a little girl, but I don't know if we could do 4. My boys can make me crazy somedays!! LOL--good crazy though.

    Keep us posted on Henry's urologist appointment--hope it goes very well and you come up with a treatment plan. If he was to have another surgery, he is so young, he won't even remember it. Ian was still in the NICU when he had his surgery, but I think a lot of the time, the surgery is done on an outpatient basis. So not that bad, maybe just overnight.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  2. #22
    Just wanted to let you all know that I finally posted a few pics on our carepage from all of our activites in memory of Faith from the summer.

    CP: faithgracecdh
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  3. #23
    Thank you Amy.
    Will be taking a look today.
    Hope all is well with you and Steve.
    Think of you both often.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

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