(posting here in our public News forums so that it will be seen also by those who aren't members - you can respond but please know that it will be public)

An organization has filed to own the phrase "Congenital Diaphragmatic Hernia Awareness".

This means that no one, no CDH family, no other organisation would be able to use this phrase to raise awareness or help CDH babies while this organisation would be sole owner to use awareness of this birth defect as a marketing tool. No one should own awareness of a birth defect that hurts so many babies around the world each year, killing almost half of them. We are petitioning this with the U.S. Patent & Copyright office and need your help.

Please sign this petition and forward this to family and friends:

http://www.ipetitions.com/petition/cdhawareness/