last try otherwise you can watch it on our CP:faithgracemiles
http://www.onetruemedia.com/shared?p...m_medium=email
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Stay Connected
last try otherwise you can watch it on our CP:faithgracemiles
http://www.onetruemedia.com/shared?p...m_medium=email
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Amy, I love all your videos!
In your montage video, I love the line, "most people only dream of angels, we were able to hold one in our arms".
How beautiful!
http://i289.photobucket.com/albums/l...glishsmall.jpg -Katie English Mom of Henry: LCDH diagnosed at 18 weeks gestation- born March 25- 2008. ECMO for 2 weeks- CDH repair at 3 1/2 weeks- home at 8 weeks! Still on O2 at night. Also Mom to Emma (12)- Gail (10)- and Claire (7)- (Henry's big sisters and loyal guardians!) www.carepages.com (Look up HenryEnglish)
The video is great. Braden did not receive any blood. I didn't realize CDH babies often required blood products until joining Cherubs. It's still amazes me how different these babies are. Great idea!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
If you know anyone that lives in West Michigan could you all email them! I am so sad that our blood drive is not going to be successful. We don't have a whole lot of people signed up! In a church of 1400 people only 3 have signed up! 4 more people from Steve's school and I think thats it so far!
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
The video for the blood drive turned out great Amy!! Ian thought it was pretty neat to see his baby picutre in your video. Ian and I wish you the best of luck for a wonderful blood drive on the 29th and we will be thinking of you and your family that day. I hope it is a big success!!
Have you put an ad in your local paper for the blood drive or spot on the radio? Sometimes, you can get them to donate the space or air time for a good cause. Worth checking into. Making posters and putting them up is also an idea, like in your church or work place. You still have a couple of weeks--praying that more people sign up and give blood. If we lived in Michigan, we would be there for sure!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
I recently contacted a radio station and am waiting to hear back from them. We live near a larger city and they were going to charge us 360$ for one day for Faith's obit, so I doubt that they would be willing to donate space. It's a great idea though. I will look into other radio stations as well.
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Amy-the video is beautiful! I hope that more people start signing up for the blood drive and make it a big success! Good luck with it!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
Amy if you let other area churches know in time, they put it their bulletins and advertise for you too.
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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