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Thread: donations needed for the deadly disease that took Kayla away

  1. 09-21-2008, 11:17 AM #1
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    donations needed for the deadly disease that took Kayla away

    hey everyone,

    As you all know my daughter passed away from Pulmonary Hypertension but that was the after math of CDH. My husband and i are walking in memory of Kaylaon Oct 4. If anyone can please donate so that maybe we can make a little difference in research to help save some of these angels survive. The survival rate right now is only about 8% when a baby gets this horrible disease after CDH. Please help!

    you just have to go to:
    http://www.firstgiving.com/kaylarubio143

    This will explain all the details on how to donate online!
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  2. 09-21-2008, 05:08 PM #2
    Corin Nava
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    Kerri- That is wonderful that you are walking in memory of Kayla! Your firstgiving page looks great! Kayla is such a beautiful angel.

    I hope that the walk is a huge success!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
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  3. 09-22-2008, 09:29 AM #3
    Dawn Torrence Ireland
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    PH is horrible. I'm hoping someday soon we can stop CDH so PH isn't even an issue for these babies.

    I wish you the best of luck with the walk, Kerri, let us know how it goes!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  4. 09-22-2008, 07:51 PM #4
    DanielleGolding
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    All the best with the walk Kerri. I can't wait to hear how it goes!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
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  5. 09-27-2008, 08:49 PM #5
    AmyMiles
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    Kerri I will be thinking of you on the 4th...we are also walking that day for Infant loss awareness month. PPHN is one of the beasts that took Faith from us. Thank you for walking to raise awareness. Kayla is a beautiful Angel!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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  6. 09-30-2008, 01:40 PM #6
    StephanieOlivarez
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    May your walk go wonderfully.
    Kayla will remain in my heart always.
    Please let us know how the walk goes.
    Will have you in my thoughts now and on that special day.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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