Stay Connected

Page 1 of 8 1 2 3 4 5 6 7 8 LastLast
Results 1 to 10 of 73

Thread: CAAF 2008

  1. #1

    CAAF 2008

    Hi all,

    Just couldn't contain my excitement any longer!

    I think I was reliving my school teacher days BC (before children)
    as I was doing up a bit of an "excursion plan" for when we come to
    Perth. We arrive on Monday the 13th Oct at night where Shaz (our taxi driver) will take us to Sorrento.

    After that I have planned a day at Rottnest - we are going to be adventurous and do the bike thing, we are going to see Cinderella on Ice (with the Knotts!), hang out in Fremantle for a day, do the Aquarium plus a few other things. I'm really excited (as if you cannot tell).

    The biggest challenge will be the plane trip with Lily as she does not have a seat!

    We are also managing to catch up with an old school friend of mine that will be in Perth the same weekend as the conference!

    Anyhow just wanted to share!!!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg

  2. #2
    Hi Dani

    It's so close isn't it! Can't wait to meet you! See you soon!
    Maryanne (mum to Rebecca born 11/11/02 with LCDH)

  3. #3
    Dani,
    Not long to go now...
    We are excited to being seeing old friends and meeting new ones.
    Cant wait to give you a big hug, probably followed by some tears and have a singalong.
    Shaz xx
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  4. #4
    oops.. forgot about the cuddle with Ethan and Lily.. and maybe one for boof.. ROFL
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  5. #5
    I am excited for you guys. I remember how excited we were here before the conference in July. Have a blast.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  6. #6
    Senior Member
    Join Date
    May 2007
    Posts
    2,446
    Blog Entries
    50
    I'm jealous! I wish I could fly out there and meet you all

    Have a great time-take TONS of pictures for your far away friends!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  7. #7
    You all are going to have a great time at your conference! Take lots of pictures, for we want to see the great time our friends had!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  8. #8
    YOU ALL ARE GOING TO HAVE SUCH A GREAT TIME!!!!
    Someday I will be attending a CAAF with all of you!!!
    Enjoy each other and remember we will all be thinking of all.
    TONS of pictures PLEASE!!!!!
    I can't wait to hear all about the wonderful time you will have.
    Hugs to you all.
    Everyone have a safe trip there and a safe trip home.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  9. #9
    Thanks Maryanne & Shaz - I know I keep saying it but I simply cannot wait! Of course there'll be plenty of hugs!!!!

    Corin - now you know how jealous we all felt! LOL! Funny isn't it, but we will meet one day, I am sure of it. One day when my kids are older and we will come to the US!

    We will definitely take lots of pictures!!!

    Love to you all, my CHERUBS mates!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg

  10. #10
    Have a great time!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

Similar Threads

  1. Meeting of CAAF Committee
    By DanielleKessner in forum State and International CDH Support
    Replies: 7
    Last Post: 06-02-2009, 06:40 PM
  2. CHERUBS 2008 Accomplishements
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 2
    Last Post: 04-08-2009, 01:44 PM
  3. CHERUBS 2008 Yearbook
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 16
    Last Post: 02-04-2009, 11:45 AM
  4. CHERUBS 2008 Membership
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 2
    Last Post: 01-25-2009, 10:56 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •