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Thread: CHERUBS 2009 Conference???

  1. 10-01-2008, 08:14 PM #11
    PennyCampsey
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    Shanell .. i love that photo of Ayda !!!
    I am wondering too ... where it will be next year.
    Not sure if we can make it or not, but will put %100 effort to. We would LOVE to come out west , this would give us a "REASON" to!
    I definitely want to come!!
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  2. 10-01-2008, 08:29 PM #12
    StephanieOlivarez
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    DANIELLE!!!! HOW EXCITING!!!!!!
    TEXAS>>>>TEXAS>>>>>TEXAS!!!!!!

    I am kidding...where ever it is..at least I will be coming.
    To drive to SF would take DAYS!!!!!!!!
    But I am already excited to be hearing of ALLLLLLL these members coming!!!
    Oh the fun we will have!!!!!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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  3. 10-01-2008, 10:02 PM #13
    Corin Nava
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    I am already sooo excited for next years conference. I have told Nate one way or another I am going to go! Probably by myself for financial reasons but I will be there!!!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
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  4. 10-02-2008, 07:50 AM #14
    FernandaArce
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    Yeah, I guess it will be only me and Ernesto, but who knows....
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  5. 10-02-2008, 08:12 AM #15
    KimberlySwitzer
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    ahh im soo excited to meet you all Its going to be so fun!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
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  6. 10-02-2008, 11:20 AM #16
    Chris and TracyMeats
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    Somewhere on the west coast would be great! We have been saving money for a trip to CA for a year now and we could make a family vacation and do the Cherubs conference if the dates were right and worked with Chris' work schedule. I know we couldn't do Texas. Anxious to hear where Dawn has selected and the best place to get more people to attend.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  7. 10-02-2008, 11:29 AM #17
    PennyCampsey
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    I am anxious to hear, too Tracy !
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  8. 10-04-2008, 07:48 PM #18
    AmyMiles
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    Ooh TX sounds like fun.
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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  9. 10-04-2008, 07:55 PM #19
    KarlaHolt
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    I'm game for either location!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  10. 10-06-2008, 05:49 AM #20
    DanielleKessner
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    I guess we would prefer San Fran (cost wise) but if it is Texas we will just have to work it all in. When we decided we wanted to come the Aussie vs US dollar was as good as it has been in years. It has been steadily coming down over the past month or so - we are going to put some spending money on an Travelex card before it gets too bad! I was coming a few years back back but the dollar dropped way too low - if that happens againI will wonder if I am meant to come or not!

    Hopefully it will all work out!!!
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
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