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Thread: A Walk to Remember

  1. #11
    Great pictures, Amy! Sounds like things went well.
    Of course Faith is proud of you and Steve. She was very blessed to have the two of you for her mommy and daddy!
    http://i289.photobucket.com/albums/l...glishsmall.jpg -Katie English Mom of Henry: LCDH diagnosed at 18 weeks gestation- born March 25- 2008. ECMO for 2 weeks- CDH repair at 3 1/2 weeks- home at 8 weeks! Still on O2 at night. Also Mom to Emma (12)- Gail (10)- and Claire (7)- (Henry's big sisters and loyal guardians!) www.carepages.com (Look up HenryEnglish)

  2. #12
    Amy - you are the best Mom in the world. Our Fath is so proud of her Mommy You do so many wonderful things for Faith. You should be so proud of yourself. I am sure she smiles down on you and Steve each time

    How special you did a balloon for Drake, I am sure Christy loved that Losing both of our angels so close was so hard on so many of us. I know I cried for days. We will never forget our Faith and our Drake
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

  3. #13
    Amy, Was that the Walk to Remember at UM? I 've been the last 4yrs!
    This year I've had so much going on, I missed it! I wish I had been able to go this year!
    Kim Richards Mom to Olivia Raine 08/31/02-09/19/02 LCDH- Ecmo 19 days Mom to Alyssa 3/30/00 & Carsen 02/19/04

  4. #14
    Kimberly, the walk at U of M is this weekend-10/18. I'm going, as well as Amaiya's mom and dad. Our group keeps getting bigger!
    I made copies of Amaiya's CDH ribbon on 4 x 6 photo paper and attached a lanyard to wear around our necks-(Thanks Barb for that idea!) We will also release balloons.
    Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!

  5. #15
    Hope all goes well Deb. Good to see you back on line.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  6. #16
    Amy,
    You truely are amazing. If it wasnt for our talks sometimes I think i would go crazy.
    I love that you included Drake. The pics you sent had me in tears. You are truely Drakes " Godmother".
    Thank You Amy !!!!!!
    Christy Michel http://burtnchristy.blogspot.com/ Mommy of Drake Alexander Michel born with LCDH on 2-18-08 ( bowels- intestines-stomach- & spleen up) developed chylothorax after surgery. went with the angels after 7 precious weeks on 4-6-08 also mommy to Shawn Michael Voisin born 9-24-94 & Celia Grace Michel born 7-1-09 http://drake-michel.virtual-memorials.com http://i28.tinypic.com/2ms5409.jpg http://tac.families.com/cb/241069.png http://projectsweetpeas.com/DrakesDoodlebugs.aspx

  7. #17
    Our family walked/planted a tree in memory of Amaiya yesterday. We met Amy and her husband Steve. My family thought that was so cool! We even ran into two other families we know but did not know they had a loss of an infant. The ceremony was uplifting, the walk to the site was beautiful. I have pictures, I just can't figure out how to post them. My computer guy (my son) just left to go to Cedar Point for the day. As soon as I can I will post my pictures.
    Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!

  8. #18
    Our family walked in memory of Amaiya yesterday at U of M. I made necklaces from the CDH ribbon for all of us to wear. We wrote on our pink balloons the Cherubs website address. We met Amy and her husband Steve. My family thought that was really cool. I told them about Faith. I have pictures to post but not sure how to add them. My computer guy (my son) just left to go to Cedar Point for the day. I will get them posted as soon as I can.
    Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!

  9. #19
    Our family walked in memory of Amaiya yesterday at U of M. I made necklaces from the CDH ribbon for all of us to wear. We wrote on our pink balloons the Cherubs website address. We met Amy and her husband Steve. My family thought that was really cool. I told them about Faith. I have pictures to post but not sure how to add them. My computer guy (my son) just left to go to Cedar Point for the day. I will get them posted as soon as I can.
    Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!

  10. #20
    Sorry about all the posts! I was having computer trouble it kept booting me off! LOL I'm soooo sorry.
    Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!

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