Well, I figured out how to post to my user album. You can view the pics of the walk/planting ceremony there.
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Well, I figured out how to post to my user album. You can view the pics of the walk/planting ceremony there.
Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!
The pictures are GREAT!!! Thanks for sharing with us.
What a special day.
Bless you all.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
The pics are great! What a special day for your family to remember your precious Amaiya. Amaiya's new avatar pic is beautiful--what a precious angel.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
I love the new pics of Amaiya.
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
Thanks ladies! Our angel Amaiya has extended our family. I know she is smiling down on us whenever we all get together. Our group went out to eat after the walk, we had a great time!
Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!
The Miles family are an extraordinary bunch of folks aren't they?
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
Yeah, they are. I'm going to help out with the Ronald McDonald House picnic next summer. I don't work in the summer and I live so close. I am also going to make a couple of blankets and donate to the unit. I'm a little afraid to go to the unit again. Saturday was the first time I've been back at the hospital since the day Amaiya passed away, we were all a little teary at first. 'some days are good and other days I'm a mess.
Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!
Deb it was so good to meet you and Amaiya's parents. What a sweet couple. I am so glad you had your lanyards on so that I could ID your family
We haven't been back inside the hospital yet, I am sure that it will be hard. Since we had been back for the RMD dinner prior it was a little easier to drive up to the hospital.
We also highjacked Faith's primary nurses and they stayed by our sides durign the program.
Kim- The first pictures are from the walk in Grand Rapids. I will try to put up pics from U of M
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Still bummed I missed it. I thought it was the 1st weekend in Oct. But anyways, been busy with work, the kids in school, just can't seem to keep up with everything! Can't wait to see the pic's!!
Kim Richards Mom to Olivia Raine 08/31/02-09/19/02 LCDH- Ecmo 19 days Mom to Alyssa 3/30/00 & Carsen 02/19/04
Amy, I'm glad you saw us. I thought since you went to the one in Grand Rapids you wouldn't come to U of M. Please keep me in mind to help next summer with the RMD dinner. I'm going to make a few blankets and take them to the unit before christmas.
Grandmother of Amaiya Annalyce Thompson. Born 05-2-08 passed away peacefully 05-26-08. LCDH- liver- stomach- sm intestines up- gortex repair at 2 1/2 weeks. ECMO 22 days- nitric oxide 2 days- vent 24 days. She was such a fighter! Had to be kept very sedated. Always pulling out one tube or another!
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