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Thread: National Children's Memorial Day - December 14, 2008

  1. #1

    National Children's Memorial Day - December 14, 2008


    http://www.compassionatefriends.org/

    Every year since 1997 CHERUBS members have participated in National Children's Memorial Day. This was started by Compassionate Friends in remembrance of all children lost and they have 1000's of volunteers who work very hard to have this day passed every year. This includes children of all ages, including those not yet born, and includes children lost from all diseases, birth defects, accidents, murders, suicides - ALL children. Because we have several cherubs who were lost over 1 yr old, the Pregnancy and Infant Loss Day didn't encompass all of our cherubs - National Children's Memorial Day does. It also allow grieving parents to meet with other local grieving parents in their areas. This event occurs every year on the 2nd Sunday of December and proclamations by the Senate and President are signed. Proclamations are also signed by other heads of state around the world.

    Each year, most of our grieving families light candles at 7:00 pm - with each time zone this creates a continuous light around the world for 24 hours. Many of us light candles for our cherubs and for other cherubs as well. I invite ALL members to participate this year. This includes those of you who still have your cherubs - please light a candle for those cherubs lost, in honor of your miracle and blessing of still having your cherub here.

    Some of you may know, I have had many miscarriages. I light candles for those babies as well and light candles for many cherubs. I started doing this in 1997 and in 1999 I had to add a candle for Shane. That first year his candle (a tealight) caught my coffee table on fire. 20-something candles on the table for my babies and many cherubs and his somehow got the polyurethane so hot that it burnt a hole in my antique table. I still used that table until last month when I got married and didn't have room for it - I smiled every time I saw that burn mark - like Shane was sending me a sign that he was there. Because the 2 years before, he had been, watching the flames on the candles as his dad and I said prayers for the children lost. And saying prayers for how thankful we were to have him still here. This is why I ask of all you to participate - in joy for our cherubs still here and in memory for those who are not.

    Some other things we can do to also raise awareness.... wear CDH Awareness clothing. It doesn't matter what group it's from, what color the ribbon is... just raise awareness. Our Texas members had group candle lighting ceremonies for 2 years. I help a group candle lighting in NC for all local grieving parents (not just CDH) one year. Churches will often include information in their services and programs if you ask. Many churches will let you hold candle lighting ceremonies as well. During the day you could organize a balloon release with the children's names on the balloons (florists will often donate them). Local newspapers usually welcome stories on NCMD and the events held locally. This is a great way to raise awareness of NCMD and CDH. Or you can just gather your family in your home and light candles and say prayers at 7:00.

    The week before NCMD, our site will change to black and white and there will be a listing of all the 100's of babies lost to CDH on our homepage, with a candle by each of their names (make sure you check the box to give publishing permission on your Profile so your cherub is included if your cherub has wings). This will stay up for 1 week and it will be a very solemn reminder of just how many cherubs are lost - scrolling and scrolling through a list of names of victims to CDH is heartbreaking when you think of all the families of all these children. We do this out of respect for our grieving families, those who will not get to buy toys for their cherubs this Christmas or watch them build snowmen or celebrate New Year's.

    The point of all we are doing for NCMD, of all of this, is let us all participate this year and remember why we are all here - to help CDH families and to try to stop the loss of more babies to CDH.

    If you would like to hold a local event, please let us know.

    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Dawn,
    What a beautiful story about the coffee table. I will definitely be lighting candles for all the Cherubs that have lost the battle against CDH and for the babies of my own that I have lost due to miscarriages. Thank you for posting about this.
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg

  3. #3
    Senior Member
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    I will definitely light some candles for all children lost. I think that is a wonderful idea.
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  4. #4
    It is a great idea Dawn. That is beautifully written, I smiled the whole time. I will also be lighting some candles in the house.
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

  5. #5
    Count me in!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

  6. #6
    I'm going to talk to the local newspaper and see if they will do an artical on this. Thanks Dawn.
    Lots of Love- Carrie Mom to Colton Michael- RCDH-Surgery at 5 days for a repair and at 6 months to add a patch.

  7. #7
    I'm so glad so many of you are participating! We didn't make a big deal out of it last year because the site was just live and we had so much going on. So I'm determined to make up for it this year.

    I wrote an e-mail to my preacher and he's going to add a paragraph to our church program for that Sunday and invite all grieving parents for a candle-lighting ceremony. Nothing major, very casual, but my church is pretty big so that's a lot of awareness (new church since I've moved and they don't know about Shane and CDH yet). I'm already talking to the local paper about CHERUBS moving into town, will see if they will do an article on this as well.

    I have to order a CDH Awareness sweatshirt or turtleneck.... it's cold here !
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #8
    I will definitely light few candles. I will also tell my family. I love the idea.

  9. #9
    Candles will be buring at my house.
    Thanks for posting this Dawn.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  10. #10
    Just a reminder that tonight is National Children's Memorial Day!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

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