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View Poll Results: When & Where Should Our 2009 Conference Be Held?

Voters
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  • June 25-27, 2009 in Corpus Christi, TX

    1 4.76%
  • June 25-27, 2009 in San Antonio, TX

    4 19.05%
  • July 9-11, 2009 in Corpus Christi, TX

    0 0%
  • July 9-11, 2009 in San Antonio, TX

    0 0%
  • July 16-18, 2009 in Corpus Christi, TX

    2 9.52%
  • July 16-18, 2009 in San Antonio, TX

    5 23.81%
  • July 23-25, 2009 in San Antonio, TX

    7 33.33%
  • July 23-25, 2009 in Corpus Christi, TX

    2 9.52%
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Thread: CHERUBS 2009 International CDH Conference

  1. #91
    Senior Member
    Join Date
    Dec 2007
    Posts
    599
    Like I said before, I can't leave Michael. I'm not comfortable being a two hour drive away from him and I certainly can't risk bringing him along. I'm sure you know where I'm coming from, having raised a very complicated child yourself.

    It's a bummer, but what can you do. Another few years and he'll hopefully outgrow the pulmonary hypertension and we won't be as limited.
    ~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!

  2. #92
    We understand. I definitely do, I used to haul Shane around on the vent and oxygen tanks, feeding pump, etc - wasn't easy. We used to visit family 2 hours away and it was an adventure so I understand. A lot can change in 6 months... maybe Michael won't even need the vent. As far as germs, etc - we all understand.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #93
    Im still planning on coming, by myself though! Im searching for cheap flights now, so hopefully I will have some luck!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage

  4. #94
    Im coming i have to get together with Corin to book our flights together.

  5. #95
    I still don't know if I can attend. If Gods helps us, and allows my Juan to be ok by that time, My Hubby, Adrian, Juan and me will be there.


    Oh no Melissa, that is sad news. I was looking foward meeting you (if I go) But I totally understand. I have a question for you Melissa, do you know if the Covenant Hospital in Lubbock offers ECMO? I can't find a web site with the hospitals info. I got the Childrens Hospital from your Web Site, and I looks soo nice.
    http://i618.photobucket.com/albums/t...bonsmall-1.jpg http://i369.photobucket.com/albums/o...las/img253.jpg JM having a bath- favorite time of the day !!! Marilu- mom to Gael 10 years old, Derick 4 years old and my cherub Juan in a Million diagnosed in utero @ 18 weeks with LCDH. Born at 38 weeks- repair day 12- 2/3 of diaphram missing (in two sections) part of the bowels and liver in chest cavity. Oscillator 8 days- vent 14 days- extubated day 22- 1st full bottle day 28- chest tube for 21 days- Home day 42!!!! NOW 6 YEARS OLD And still doing miracles, Loves karate classes. -*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-

  6. #96
    Senior Member
    Join Date
    Jun 2007
    Posts
    907
    Blog Entries
    1
    Can't give a 100% promise but it still looks like Julian and I will be attending. As soon as our tickets are booked I will let you know

    Oh no Mel. I didn't realise you wouldn't be able to attend if it was in San Antonio - just thought you couldn't help organise. Very sad Like Dawn said, a lot can happen in 6 months so I will have my fingers crossed!
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

  7. #97
    I plan on attending--by myself. Lexi will be in summer camp and one of us needs to be here.

    So--put me to work when I get there Dawn. Do you have any idea on what the schudule will be?

    I am thrilled to see so many plan on coming. So excited to meet all of you. Excited to see members I have already met. I am just excited!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  8. #98
    Senior Member karahess's Avatar
    Join Date
    Sep 2007
    Posts
    1,961
    Blog Entries
    22
    Steph, you are so funny already wanting to know a schedule! Now, now everyone! Let Dawn breathe!

    Everyones enthusiasm and excitement for the conference is absolutely AMAZING! Keep it up! Let's all show our support!
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

  9. #99
    Thank you, Kara! LOL

    Working on the hotel, waiting on a lot of responses. One of our members is in San Antonio and is helping us to find a place, yeah! There are lots and lots of hotels on the riverwalk but they are pretty pricey. Looking for something within a couple of blocks and cheaper.

    Can I get a rough idea on how many rooms we'll need? With some of you sharing and bringing your families and not bringing your families.... I'm lost on how many we need!

    Remember - this is a family friendly event!!! Cherubs and children are all welcome to attend!! There will be kids entertainment and babysitters during the conference. Lots of local attractions for the kids and we make sure there is a pool at the hotel (though the sitters do not take the kids to attractions or the pool for safety reasons - but you can take them after the conference). Our conferences are great about making sure everyone has time to hang out, get to know each other and see local attractions too. Plus, since this a conference about cherubs it's great for the survivors to meet other survivors and siblings to meet - kids need support too!

    And there is a bit of confusion I want to clear up..... the Angel Ball is in October in North Carolina. The Conference is July in Texas. They aren't in the same place at the same time this year, I'm sorry! However, you are all encouraged to come to BOTH! The conference is definitely family oriented and fun but won't be wild - the Angel Ball is an adults only formal masquerade ball with partying, dancing, an auction and a casino this time. All in formal costumes. So I encourage you all to attend both to have the maximum amount of CHERUBS fun!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  10. #100
    Dawn, I love the new avatar! I have been thinking that maybe Jeff and I can come to the ball and Baer can stay with Grandma for trick or treat.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

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