Lynne, I'd love to see you guys at the Ball!!!
Since it's the day before Halloween you can still get home in time to trick-or-treat if you really want to.
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Lynne, I'd love to see you guys at the Ball!!!
Since it's the day before Halloween you can still get home in time to trick-or-treat if you really want to.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
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One room for the Kessner's please
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
Sounds good to me!
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
One room for me!!! Who wants to share a room with me?????? Corin, Barb...anyone.......lol
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
I'm still in the air about the conference. I hope to be able to attend, but will have to play it by ear.
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
My family will need a room if we can make it. Trying really hard to make this work--I was hoping for any of the dates, besides the date that won. Looking forward to where you find the conference room/hotel, so we can definitely start planning and hopefully make this work for us.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Steph, I'll share a room.
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
Hopefully you can make it Tracy. I really want to meet your boys.
Me too Jenn!! I think my husband is going to buy earplugs so he doesn't have to listen to me talk about it!! I ordered a Texas travel guide and hopefully that shows up soon. I am really trying hard to juggle a few things and make this a family vacation and hopefully my husband can juggle a few things in his schedule too. Cole my oldest knows there is a Sea World and wants to go bad (he loves animals/sea life). He keeps telling my 2 year old (and I didn't come up with this) that mommy will take him to Sea World if he starts peeing in the potty and gets rid of the diapers!! It would be so wonderful to have him potty trained before July.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
That's so cute Tracy! We talk about it all the time in our house too as we are all so excited. Brooke keeps practicing how to pronounce "diaphragmatic hernia." She must think she will quizzed on it! I hope you can make it work in your schedule.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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