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Thread: Awareness activites

  1. 01-20-2009, 10:35 AM #1
    joannamonteiro
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    Awareness activites

    HI...

    My husband and I were talking and he began talking about my baby shower and how we can somehow include some info about Cherubs and CDH. I told him that if and when a shower is planned that we can include a small pamplet about Cherubs and also RMH and ask for donation in Gabby's honor as gift and we would then match it and split it between CHERUBS and the RMH.
    Dawn or any others I wanted to ask u if u had any ideas about what could be included in the invitation that is concise but informative about CHERUBS and CDH.

    If anyone could offer suggestions I would greatly appreciate it!
    Peace&Love- Filipe&Joanna Expectant parents to baby Gabriella diagnosed with LCDH at 21 weeks being treat at CHOP
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  2. 01-20-2009, 11:02 AM #2
    KarlaHolt
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    I did something like this for braden's baptism. I decided to set up a firstgiving page at firstgiving.com. I sent the page to family and friends via email. I didn't have to put anything on the invitations. The best part is you can personalize the page with pictures and information and all the donations go directly to cherubs.

    Braden's page is expired now but I'm sure some others here may have an active page you can look at for an example.

    It's great that you want to do this!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  3. 01-20-2009, 07:10 PM #3
    DanielleGolding
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    I asked for donations for Lily's 1st birthday. On the day I had some info on CDH displayed. For eg. a diagram with an explanation, info about how Dawn began CHERUBS. I printed the info straight from this site.
    I think it's a great idea, well done!!!!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
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  4. 01-20-2009, 07:41 PM #4
    AmyMiles
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    I agree to set up a firstgiving.com page! It's easy and free! Then the money goes to CHERUBS!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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  5. 01-20-2009, 08:00 PM #5
    joannamonteiro
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    Ohh that great... excellent info.. Thanks guys
    Peace&Love- Filipe&Joanna Expectant parents to baby Gabriella diagnosed with LCDH at 21 weeks being treat at CHOP
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  6. 01-21-2009, 12:16 AM #6
    StephanieOlivarez
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    Firstgiving is GREAT!!
    Please do let us know if you set up a page--we will want to see it!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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