Wonderful news! I can't wait to see the press release!
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Wonderful news! I can't wait to see the press release!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
You are such a tease Dawn!!!!!
Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg
I cannot wait to hear, Dawn. What a great gift for Shane's birthday week
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
When will we find out again? Next week? What day?
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
OMG I am dying here!
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
Sorry guys, I'm working on it as much as I can... we have a lot of deadlines this week and all these huge projects and my head isn't that clear this week but I am trying my best to get it done by Friday. Waiting for our celeb to send me the photo she wants to use too and she has to approve the press release (shouldn't take long, she's been great at answering e-mails herself).
Advisors.... smack me next time I break news too early again!!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Love the drama!! Can't wait to hear!
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!bowel- liver- small intestines up with gortex repair had her repair while on ECMO on ECMO for 44 days (her entire life) Nitrate for 30- vent for 34 days- oscilator for 10 days Our Blog: www.thecreekbaums.blogspot.com
She now has the press release and the second she e-mails it back to me with her edits and says it's good to go - then I'll let you all know!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
VERY EXCITING!!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
WAITING LOL
Christy Michel http://burtnchristy.blogspot.com/ Mommy of Drake Alexander Michel born with LCDH on 2-18-08 ( bowels- intestines-stomach- & spleen up) developed chylothorax after surgery. went with the angels after 7 precious weeks on 4-6-08 also mommy to Shawn Michael Voisin born 9-24-94 & Celia Grace Michel born 7-1-09 http://drake-michel.virtual-memorials.com http://i28.tinypic.com/2ms5409.jpg http://tac.families.com/cb/241069.png http://projectsweetpeas.com/DrakesDoodlebugs.aspx
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