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Thread: Big News.... BIG NEWS....

  1. 01-28-2009, 01:15 PM #41
    lcreekbaum
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    Me, too!
    Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown! bowel- liver- small intestines up with gortex repair had her repair while on ECMO on ECMO for 44 days (her entire life) Nitrate for 30- vent for 34 days- oscilator for 10 days Our Blog: www.thecreekbaums.blogspot.com
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  2. 01-28-2009, 11:11 PM #42
    JenniferBrown
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    can't wait to find out
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  3. 01-29-2009, 01:02 AM #43
    AngelaLogozzo
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    This is getting very exciting - cant wait to find out who it is!!!
    Angela - mum to Max (LCDH 30/4/05 - 21/5/05) Also mum to Joseph 9- Christopher 7 and Dominic 2.
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  4. 01-29-2009, 03:09 AM #44
    Guest
    I can hear a drum roll.............
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  5. 01-29-2009, 06:00 AM #45
    DanielleKessner
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    lol - you will never make the same mistake twice hey Dawn I think it's good to get us all excited though.
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
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  6. 01-29-2009, 10:09 AM #46
    Dawn Torrence Ireland
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    Sheesh, you aren't kidding, Danielle, I learned my lesson!!!! Maybe there is a link to CDH and parents with a lack of patience!!! LOL (myself included!)
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  7. 01-29-2009, 11:01 AM #47
    kimberlybyington
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    Very excited, can't wait to here the news...
    Mommy to Jesse- LCDH (9-23-99 TO 9-24-99) lived 15 hours than got his wings. Austin (11-26-00) happy and has ADHD. Colton (7-29-02) happy and healthy.
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  8. 01-29-2009, 09:36 PM #48
    JaanaRosenlund
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    I was trying to figure out last nite who it could be...........we are all on the edge of our seats!!!
    Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
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  9. 01-29-2009, 09:44 PM #49
    Damon andSharonknott
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    tick tick tick....
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
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  10. 01-29-2009, 09:47 PM #50
    KarlaHolt
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    Can't wait!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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